What would you do if you were told your child had a rare and fatal genetic disorder that would cause blindness, seizures, cognitive decline and mobility issues? Would you pray, cry, make precious memories and fight to save their life then join Sybil Mizzell's Circle of Light and their fight for a Cure. 

Sybil Mizzell is a radiant and resilient young woman battling Batten Disease—a rare, cruel neurodegenerative disorder that steals away vision, the ability to think and move, leaving its victims in darkness. 🌑

The world through her eyes is beginning to slip away, seizures are becoming relentless, tremors are increasing, it's getting harder to swallow, balance, and process thoughts, but she doesn’t let her condition dim her spirit or the warmth of her heart.

"I’m so scared, but I’m never going to stop fighting. I still have hopes and dreams. I dream of going on another mission trip to share my faith. I dream of becoming a teacher’s assistant. I dream of getting married and having a family. And I dream that one day there will be a cure! "- Sybil Mizzell

💫A cure is closer than ever before, but the treatment is still considered experimental and not covered by insurance. The cost is high, over $1 million, but accepting her fate without fighting for a cure was unacceptable for her family, but they need help.

The family started Sybil's Shinning Light to fund a path to a cure for Sybil, in hopes it will lead to a cure for others battling Batten Disease. They want to give Sybil the best possible life and spread awareness of the urgency to fund research and treatments.

Sybils Shining Light isn’t just about Sybil. At least 5% of all donations will be used to fund research and treatments for all children fighting this devastating disease. This campaign could be pivotal in making sure Sybil and others can continue to shine their light despite the darkness of Batten Disease.

Your contribution isn’t just money; it’s fuel for hope, love, and resilience. Every dollar counts—Join us if you can. Share Sybils story and this campaign with your friends and family. Help us make sure that when darkness threatens to take over, there are always enough lights to chase away fear and sadness. 🌟