At just 22 years old, Taryn dedicated her career to caring for others. Today, she is the one who needs our help.
Taryn is a registered nurse whose life has been dramatically changed by three serious medical conditions:
- Hypermobile Ehlers-Danlos Syndrome (hEDS) — a connective tissue disorder that can cause chronic pain, joint instability, and debilitating fatigue.
- Postural Orthostatic Tachycardia Syndrome (POTS) — a disorder affecting the autonomic nervous system that can make even simple daily activities extremely challenging.
- Mixed Connective Tissue Disease (MCTD) — a rare autoimmune disease that can affect multiple systems throughout the body.
Together, these conditions have affected Taryn's health so severely that she can no longer work as a nurse.
A Difficult Road to Treatment
Every Wednesday, Taryn travels from Port St. Lucie to Boca Raton to receive specialized physical therapy from Dr. Marcia Cristiane Perretto, a Doctor of Physical Therapy who has written extensively about hypermobility-related conditions.
Her weekly treatments cost $250 per session, or approximately $13,000 per year.
Although Taryn has comprehensive health insurance, her physical therapist does not accept insurance. Her family is actively pursuing reimbursement, but the process has been extremely challenging.
For now, the family must pay these expenses entirely out of pocket.
And this isn't a short-term challenge. Taryn is expected to need ongoing treatment for well over a year, potentially indefinitely.
Why We're Asking for Help
This year, as I celebrate my 56th birthday, I've decided to do something different.
Instead of receiving birthday gifts, I'm asking my friends, family, and community to help a young woman who has devoted herself to helping others.
Taryn is the daughter of Michelle, our General Manager at Chill at the Cay. I've seen firsthand how much Michelle gives to others, and I want to do something meaningful for her family.
Our initial fundraising goal is $20,000 to help cover Taryn's specialized treatments, weekly travel expenses, and additional medical-related needs.
Whether it's $5, $10, $20, or whatever you can comfortably give, every contribution makes a difference. And if you're in a position to give more, your generosity would be greatly appreciated.
Let's Come Together for Taryn
At 22, Taryn should be looking forward to a future filled with possibilities. Instead, she's facing medical challenges that have interrupted the career she worked so hard to build.
We cannot take away these challenges, but together we can help ease the financial burden and give her the opportunity to focus on her health.
She chose a career caring for others. Now it's our turn to care for her.
Thank you for helping make my 56th birthday about something far more meaningful than gifts.
With gratitude,
Marc Bianchini
