Update 9/28/2026 from Destiny: Happy national sons day to our amazing, marvelous little boy Garrett
You are 4 months old today and it seems insane how you are already that old. But what’s that saying? Time flys by when you’re having fun? You are one of our biggest blessing and you teach me how to be strong and learn things I never thought I would have to know.
Our amazing family and friends, we wanted to thank you all for everything you have done to help us along this wild journey. We wanted to provide a little update for everyone since it has been a while.
About two weeks ago Garrett ended up back in the PICU after a really big event. We are so thankful to the first responders and family for helping us during that very scary time. The first responders were quick to show up and get us to the hospital quickly and safely. The truth is we are going to be frequent visitors of the PICU and we are getting to know that a little more. Garrett got the Rhino Virus which his body did not know how to handle that. He is doing well now, but now remains on oxygen at night to help him and he is also on elevated BiPAP settings which are now his “sick settings”. While we are home now, he’s on more medications to help his body especially during the cold season.
An ongoing battle for us is our home nursing situation. We ended up switching nursing agencies due to the inability to staff our case. We had a set night nurse and day nurse but now it seems we are running into the same staffing issues. While we work to find reliable nursing I get to spend this time with Garrett and providing the care he needs while I am still home.
We have been visiting with his medical team a lot and still working to travel back and forth since his team is up at children’s. Additionally, we had our first infants and toddlers meeting where we have established goals for Garrett. We enjoy the time with his medical team, the more people we meet just means that they get to meet our amazing bundle of joy.
For those who have asked, here are a few things below:
- recommendations for nursing company’s in our area with reliable nurses
- keeping us in your prayers
- https://www.amazon.com/.../destiny-cusic.../EFUY64M6FV0S
-Donations via givesendgo
Update 8/6/2026 from Destiny: It’s been a little while since we’ve shared an update on our sweet boy.
Garrett is still in the NICU, but we’re hopeful that home is getting closer. Right now, it’s all about taking things one day at a time and making sure he continues to do well. Before we can bring him home, we’re also getting everything in place for the care he’ll need, including home nursing support.
This past week brought a couple of scary moments when Garrett had two breathing events. Thankfully, he was exactly where he needed to be, and the team at Children’s responded so quickly. We’ll never be able to thank them enough for the incredible care they continue to give our little guy. We’re currently on an event watch, so we’re hoping and praying for a quiet week with no more episodes.
This journey has been nothing like we imagined, but we’ve learned to celebrate every step forward, no matter how small. We’ve also met some truly amazing families during our time in the NICU. If you happen to think of them, too, keep them in your thoughts as they continue their own journeys.
To everyone who has checked in, sent encouraging messages, visited, brought meals, donated, or simply thought of our family—thank you. Your kindness has meant more than you’ll ever know, and it’s helped us get through some really hard days.
We’re so thankful for all the love surrounding our little family, and we can’t wait for the day we get to share that Garrett is finally home and can meet his big sister. 🤍
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On May 28th, Ethan and Destiny welcomed their precious son, Lee Garrett Frawley, into the world.
While this should be a time filled with nothing but celebration, their journey into parenthood has come with unexpected challenges. Out of respect for their privacy, I won't share the details, as that is their journey and story to tell when the time is right. What I can share is that Destiny is recovering from a C-section, and baby was transferred to Children's Hospital, where his parents remain focused on being by his side every step of the way.
Right now, their focus is exactly where it should be — on Lee, on healing, and on taking each day one step at a time. Like any new parents, they are looking forward to the day their family can finally be reunited and Lee can meet his proud big sister, Danielle.
As they navigate the days ahead, they will be faced with the expenses that come with traveling back and forth to the hospital, fuel costs, meals, possible lodging, and the many unexpected costs that arise during a season like this. My hope is that we can come together as a community and help ease some of that burden so they can focus on what matters most.
If you feel led to give, any amount is greatly appreciated. If you are unable to donate, please consider sharing this page and, most importantly, praying for this family.
Please pray for little Lee "Garrett", for Destiny's healing and recovery, and for Ethan as he supports his family through this journey.
In times of uncertainty, we lean on our faith and trust that God will provide comfort, strength, peace, and hope. We know He is holding this family close and walking beside them every step of the way.
Thank you for surrounding them with love, support, and prayers. Every donation, share, and prayer is deeply appreciated and means more than words can express.
