Goal:
USD $20,000
Raised:
USD $5,850
Campaign funds will be received by Trisha Lewis
My name is Trisha. I was born with a genetic disorder that involves the kidney named Gitelman's Syndrome, after the doctor who found it first at the University of North Carolina. It is an autosomal genetic disease and cannot be cured. It is extremely rare globally and affects each person differently, making it extremely difficult to treat and even more difficult for people to understand.
It is a salt-wasting and electrolyte spilling condition that is extremely severe in my case. Similar to conditions with chemotherapy, I have to have infusions of potassium to live; however, the chronic treatment with potassium replacement is highly caustic/acidic to the system and has greatly taxed the entire digestive syste, leading to gastroparesis, a hole in my colon, Barrettes esophogus, minimal stomach lining, and uncontrollable acid reflux. I also suffer with hypoglycemic events due to chronically low potassium and magnesium, heart attacks, seizure activity, tremors, severe osteoporosis, vision loss, hair loss, restless leg syndrome and arthritis. These are just some of the side effects.
I am now attempting to live with an average 2.6K level which is critical. I may have an infusion every other day for 6-8 hours.
I tried to work as long as I could. I simply couldn't accept the fact that I could not and should not be working in my condition. I collapsed at work with cardiac arrest 18 months ago (summer of 2023) which changed my trajectory. I had to medically retire Nov 1,2023.
Over the past 15 years, we have continued to have faith, work hard and navigate the medical expenses and the new normal. Unfortunately, we are inundated. I am stuck in the backlog that is Social Security and we are still waiting as my application is still pending. We have exhausted any outside support and are facing a new year without resources.
I love God. I love serving Him and helping others; however, this journey has revealed to me just how much easier it is to give than receive and just how much that involves trusting HIM. It has been humiliating and humbling. We truly couldn't have gotten by the past year without the help of our friends. I am grateful for God's sovereignty as this journey has revealed far more treasures than trials. I am beyond blessed. I have a beautiful 13 year old son, Landon, and a tenacious husband, David, and we consider ourselves THE LEWIS TEAM!
If you are reading my story, thank you! If it makes you hug each other a little more often, if it encourages you that life is precious, if it helps you to slow down and be more intentional with how you LOVE others in the world, then I will be glad. If you are called to donate....Please pray over it; pray for discernment and trust how precious this is to our family. Please know we truly appreciate your prayers for healing!
Thinking of you and your precious family. I’m so thankful for you.
Thankful that we have crossed paths again and again. You inspire us all.
You are such an inspiration, and I love you.
Our love, thoughts & prayers go to you and to your family Trish. Please do not hesitate to reach out at any time. Kisses
With prayers from your balcony friends
I’m so thankful our lives crossed. You are a genuinely caring person and are in our prayers.
Love you, Trisha!
We are praying for you and your family.
Love you and your precious family!
Fear says, "What if?" Faith says, "Even if ..." I pray that God the Father would manifest complete healing in your body. That this cup can pass from you. Nevertheless, God's will be done.
Merry Christmas
#TeamLewis Love you guys
You are ALWAYS in our prayers
Thank you for sharing your story and allowing us to bless you. You are a light for Christ.
We love you, and we're praying for you!
Hugs and prayers!
March 14th, 2025
Each day M-F i need treatment with potassium. I have a daily standing appointment at the Wynship Infusion Center located at EMJC. (They have other locations for Emory but this is arguably the best.) I will continue to attend each day, however, due to ambulatory disability regulations for most corporate medical facilities.
The bottom line for potassium is 2.6K. Otherwise, it is not considered ambulatory but critical care.
Again, this is all about liability and outpatient care.My situation is an anomaly for WACH. These rules were not written and I am stuck between a rock & a hard place. If I get to my treatment and my labs, and they don't result at a 2.6 or higher, I have to report to the ER. Considering that my baseline has been 2.5 for the last nine months, that's a pipe dream! We are now not only fighting the disease, but also the process of trying to treat it. Everything just conitnues to be stacked.
I am not forlorn and I'm not forsaken. God is bigger than all of it. I can, however. admit that I'm fairly weary at this point of the side effects, the pain, the loneliness, as I enter more of a life in the hospital. More time away from my son and family, or depression and new questions every day. The journey has been interesting for sure, but one of the greatert blessings along the way, and because of that, I wouldn't trade it for anything.
So until anything changes in the near future between infusion center and the ER......
I want to extend my absolute gratitude for all of the uplifting encouragement and help from our friends & community! I couldn't have done it without them. I just know it couldn't be done without God & His community!
March 2nd, 2025
No one could ever tell me that God doesn’t talk!
I am on a roller coaster ride and not the kind. I enjoy to say the least. As I approach Monday, tomorrow morning, I am in the same boat. Will I have to go into the hospital and if I do will I come out?
this is an incredibly difficult thing to go through as a person and also as a family and now I’m also understanding as a community. I know that you care about us as if we were one under God’s glorious umbrella. I know that it is a struggle to hear me go back-and-forth and not to know what is serious and when it’s not. Although everything for me now is serious it’s a life. I don’t really understand and I can’t really explain to other people but I’m so blessed that you walk along the side of me and Care regardless I’m gonna keep saying thank you because it’s just not sufficient enough. Again I have to have a 2.5K to avoid admitting. It’s no way shape or form SAFE Haven. It’s just the baseline that we have established for me with some certainty of my tolerance. I’m going to share picture for you. That will explain. I think in detail in one snapshot the seriousness of where I am. All you have to do is google the numbers. I say all that to say is that this is a huge message from God that it’s not my time yet there is no way to explain how I’m doing this without him. And I am truly a believer to know that it is my fellow believers that are, keeping me with a forward step. And for all of you that know your scripture. Well, thank you for not being those that were walking alongside Job! I can count my friends all as extremely supportive and loving!
Thank you and bless you!
February 26th, 2025
February 21st, 2025
GOD IS BIGGER!
I wanted to give you guys a quick update!
i’ve since been hospitalized for a few days as I dipped dangerously low. All functions and abilities were leaving. The amount of prayers that were lifted up on my behalf are completely responsible for me being able to regroup and start treatment on this side of heaven. I’m not denying that heaven looks pretty good right now, but that’s not God’s plan and I am incredibly lacking and worth however I’m full of gratitude and I say awe of my most precious God! Thank you friends, thank you for extending the most beautiful Christlike love to me and my family. PLEASE 🙏 keep those prayers coming!!🙏💜🙏💜🙏✝️
February 2nd, 2025
I have made it through January! I’m reflective of just how BIG God is. Due to the numerous closures over the holidays and due to weather, I’ve had a tremendously difficult month. I would like to blame the schedule and not my body!! In all seriousness, I am stuck with a 2.4K level. This is critical. I cannot afford any activity unnecessary. This means I have had to step back from my ministry roles: Nursery, D-group leader, and City Impact for Johns Creek. In addition, I had to step back from my board role at Autry Mill Middle School. I can only express my great struggle with health and sadness. I desperately need prayers. I truly believe God created me to serve and I’m completely lost in this journey. I am grateful and blessed for every moment I have lived by sheer mercy and grace. I am human, however, and I am weary. I will continue to trust HIM🙏✝️
If you are reading this, then I know you care about me and my family and I want you to know how powerful you and your prayers have been!!!! I do not doubt miracles are from God! Every day I persevere is for his Glory. God made possible through your Christlike behavior bestowed on our family!!
THANK YOU 🙏
December 29th, 2024
I’m deeply touched by all of your support efforts!
I have continued with my treatment over the Christmas season and I can be nothing but feeling blessed. It is beyond my comprehension why so many, some who don’t know me or my family, would give. I am reminded of God's beautiful orchestral abilities!
I do want to be transparent with you regarding my health. Unfortunately my potassium has dropped back down, critically. I have also had 2 severe cases of crashing from hypoglycemic events that involved me teetering with consciousness. Our newly teenage son had to respond to his mom laying on the floor. I say all this to remind us all just how precious and fleeting life can be. I’m extremely grateful for all the support and gifts. especially as I know this is a huge season of spending! You just cannot fully imagine how much help this has provided 🙏🙏🙏🙏🙏💜💜💜✝️ THANK YOU🥰🥰🥰🙏
Blessings,
Trisha
December 22nd, 2024
It's been an incredibly blessed season! It took a lot to ask for help,
and through a lot of heartfelt tears, I trusted God. Unabashedly,
all guards down, purely faithful trust in God!
I cannot express to you how great of a response or how loud
it was!
One, within days , enough money was donated that literally will
take us through the first two months of the next year!!
You cannot have any idea what peace that brings to me & my family!
I can't imagine what anyone else is going through at this point in time, but
I pray each and every day that God blesses you and I can't thank you enough.
The LEWIS team can't thank you enough for how you blessed us.
I also know that we have been blessed in ways that are not through this campaign
and for all of those that can read this, we are truly thankful.
I would like you to know that my medical status has not changed; however, for
the first time of treatment after the campaign went public....I had my first raise in
my numbers!!!!
Please don't stop praying1 THANK YOU, THANK YOU!
Blessings,
Trisha
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