Raised:
USD $5,915
Campaign funds will be received by Alexis Gomez
George and Lexi Zarragoitia are thrilled to welcome a precious baby girl, Sofia Maria, in November 2024. The surprise of finding out they were expecting a girl shortly after the loss of both of their grandmothers brought incredible joy! At their 20-week anatomy scan, doctors became concerned that Sofia's heart was underdeveloped. Days later, a neonatologist confirmed that Sofia had a severely underdeveloped aorta and left ventricle which is responsible for delivering oxygen-rich blood flow to the vital organs. Doctors informed George and Lexi that Sofia would be born with HLHS, hypoplastic left heart syndrome - a rare and severe congenital heart defect affecting only 2-3 babies of every 10,000 born per year. Sofia would need a life-saving open heart surgery within the first week of her life.
Hypoplastic Left Heart Syndrome (HLHS) is a complex congenital heart defect. Symptoms may include cyanosis (a bluish tint to the skin), difficulty breathing, and feeding challenges. Treatment usually involves a series of open heart surgeries designed to improve blood flow and function, often starting within the first few days of life. The most common surgical approach is the Norwood procedure, followed by the Glenn and Fontan procedures over the following years. While advancements in medical care have significantly improved outcomes for children with HLHS, ongoing challenges remain, including potential complications and the need for lifelong follow-up care.
Since learning of Sofia's diagnosis and impending surgeries once she is born, George and Lexi have spent months researching and understanding more about HLHS and meeting with doctors and specialists at CHOA where she will be transferred almost immediately after birth for the first in the series of surgeries. While they are anxious about Sofia's journey ahead, George and Lexi are leaning on God and the prayers of their family and closest friends as they prepare to meet their baby and fight alongside their little heart warrior, Sofia Strong.
To learn more about HLHS and Sofia's journey ahead, please visit Hypoplastic Left Heart Syndrome HLHS in Children.
Sending a big text hugs 🤗 with lots of love and prayers! God we give you all the praise and glory for all you have done for little sweet Sofia and her beautiful family. We thank you for working all things for their good. In such a season as this we know that the joy of the lord is our strength.That we can do all things through Christ who strengthens us! In Jesus name!
Lexie, I think of you and your lil family often and will keep you in my prayers.❤️
continued prayers
Praying for little Sophia and all of you. Your strength and trust in God is a beautiful example for all.
Praying
No one should have to go through this when they should just be enjoying their new little one. Praying for each of you.
Praying for your family!
Praying for the God of all comfort to be with you during this time.
Our prayers are with you guys if you need anything at all let us know.
Praying for your family and Baby Sofia!
Sending our love & prayers. Specially to Sofia, your sweet & strong warrior.
Oh how we love your precious family! Big prayers for all of you! God has got this! Sofia strong!!! Fight! Fight! Fight!
Love and prayers for everyone!
May love and blessings continue to flow your way. You're deeply treasured. Prayers for healing and protection in Jesus name🙏
Prayers to you and your family
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