It's been a full year of Caleb's battle! Such a challenging year for the whole family!

We are humbly asking for your support in this second round of intensive treatment.

Anything given will go to help Emily with medical bills, daily living costs, and anything else that needs covered while Emily is focusing on Caleb's medical needs and unable to work very many hours.

This next round will have even more inpatient hospital time for Caleb and that creates so many challenges!

We will continue to post updates on Caleb's battle and we ask that you would continue to pray for a complete miracle and clean scans in his strong young body! Thank you for ALL of your continued support!

Below is the latest update (10/23/25) from Emily:

Caleb had a chest ct this week to see how the previously noted right lung nodules were doing. We were hoping to discuss proceeding with right lung surgery Monday but didn't get the results we were expecting. Right lung nodules are stable so thats great. Left lung, which he just had surgery on in September to remove nodules, has 4 new nodules. One of them is a decent size for only 4 weeks of growth. We met with Caleb's team to discuss options of how to attack the cancer this round. His cancer doesn't have the best treatment plan since it's so rare, which is part of the reason why the prognosis in metastatic CIC-DUX4 is so bad. There's really no specific treatment plan set for recurrence in this cancer. Our team gave us a list of all the options for potential treatments. The list included side effects, and timeline of each treatment possibly working based on the minimal evidence they currently have for each treatment related to Caleb's cancer subtype. We are deciding this weekend but are leaning towards a 3 month clinical trial that includes a higher dose chemo drug and a new drug that's being trialed for sarcomas. This trial includes a daily med and inpatient stays every couple weeks. If we decide this route is the best Caleb he will start it in the next 2 weeks.

In the last 4 weeks we got 2nd opinions from Memorial Sloan Kettering, Dana Farber, MD Anderson, Cincinatti Childrens, and Dr. Okimoto in San Fran. Unfortunately no one has any new or different recommendations from what our team here has recommended. Some of those other hospitals also offer the clinical trial we are thinking about for their recurrence cases. lt is nice that Childrens CO offers it so Caleb can receive care close to home.

We are closely following the updates and timeline from Dr. Okimoto in San Francisco. He is an oncologist but also a rare sarcoma researcher. He might have an even better treatment option for this specific cancer soon. His research study is hopefully making its way to human trials within the next year. This trial will require travel if it becomes an option.

Caleb's oncology team is an amazing group of doctors and healthcare professional's. They are always 100 steps ahead of me in research and knowledge but are still willing to spend the time explaining any option I question and they have done many peer to peers/consulting at my request. Dr. Broadman was the first doctor on our team that we met last November. After our hard conversation yesterday he gave Caleb the biggest hug. Caleb is still smiling and is a good reminder for all of us to remain positive and hopeful.