Boaz is one of our four precious children. He recently turned one, and for nearly his entire life—starting at just 7 weeks old—he has fought for every breath. What began as a scary hospitalization for RSV turned into a blessing in disguise, as it allowed doctors to notice the complexity of health issues he faces today.
Currently, Boaz's care requires specialized teams across the country to address the depth of his conditions. He suffers from a severe airway disorder (tracheobronchomalacia and bilateral bronchomalacia) that causes his airways to collapse whenever he exhales, alongside a cricopharyngeal bar in his throat that heavily impacts his ability to swallow safely. For his safety, he is hooked up to a feeding pump 24/7 for continuous nutrition due to aspiration and severe tolerance issues, along with a highly limited diet.
Although he has been through an incredible amount in his short life, his journey is far from over. His ongoing specialists are currently based out of Cincinnati until we transition his long-term care over to Colorado this coming winter for much easier travel closer to home. In the meantime, we are preparing for an intensive medical schedule. Early next month, he will undergo a brain MRI and esophagus testing to look for root causes behind his conditions and recent symptoms. Following those scans, we will be traveling to Florida late next month for back-to-back dynamic scopes and an intensive airway reconstruction surgery aimed at permanently strengthening the main trunk of his airways. Our hope is that this will finally allow him to play like a normal kid without throwing up, turning purple, or constantly getting pneumonia from a common cold.
We understand if you are not able to donate. Our family deeply appreciates your prayers and help in sharing Boaz’s story. Thank you for walking alongside us. If you feel led to give, your donation will go directly toward Boaz’s travel to specialists and the life-changing care he needs to breathe freely.
