Ben's Voice #GivingTuesday #GivingTuesday2022

Campaign Created by: The Sweetland Family

The funds from this campaign will be received by Christina Sweetland.

Goal: USD $5,000
Raised: USD $ 135

#GivingTuesday


On the outside, Ben seems like a normal 9 years old boy, but on the inside, his body is battling debilitating illness. He has so much love to give and often is trapped inside of the barrier we all know as Autism. Ben also has a genetic condition that is ravaging through his body, causing pain and kidney issues. Ben now has seizures and struggles with low muscle tone. Ben is nonverbal and cannot tell us when he hurts. He no longer can eat by mouth and struggles to keep his weight up.


Ben is only one of three children in the home that have Autism and medically fragile. Each child require countless hours of physical and occupational therapy as well as neverending doctors appointments. The family resides in their 25 year old Class C motorhome, in order to be able to travel for medical needs. Due to their health, the children can no longer attend regular school so the family has opened a homeschool. All of this has taken a huge toll on the families finances. The parents have all but closed their family business (Sweetland Repair & Low Voltage LLC), due to the constant care their children require.


Despite all of this, they still believe that God makes no mistakes. That each child is here for a purpose. Please help this family continue to stay afloat during one of their most challenging battles yet.


Let us remember Acts 20:35, Luke 14:13-14 and Matthew 25:40. Be Ben's Voice and support his family while they support him. 

UPDATES

Update #9
November 28, 2022
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#GivingTuesday

#GivingTuesday2022

#BeBensVoice

#SeeBenGrow

We need your support more than ever. Please consider us for Giving Tuesday and help us maintain our RV that we live in full time and our vehicle that is in dire need of repair. We have more appointments this month than we expected. We ask that God speak to your hearts and see what our family has been up against for nearly 10 years. 

Our Sweet Boy
November 23, 2022
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See Ben though our eyes. 

https://m.facebook.com/story.php?story_fbid=pfbid0zsJKHyVAcB6wSCJ4RgA74sn69Css1e5Xc2SHQ2rTc5BArj1mpBefkJzbGu2Tajphl&id=100001223963497&mibextid=Nif5oz

#GivingTuesday
November 21, 2022
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Please consider our family for your #GivingTuesday donation. Thank you so much.

Update #6
November 15, 2022
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The donation issue has been resolved. Please help us reach our goal so we can stay close to the children's doctors. We travel in a 25 year old Class C Motorhome and need to be able to hookup to power and water. Losing our spot would be devastating. Our truck is also in need of serious repairs due to a bad lifter (cylinder 7). Feel free to donate directly to us by using the links in the photo.

Update #5
November 15, 2022
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We seem to have a technical issue and hopefully support is working on this. Please reach out to christina.sweetland80@gmail.com if you would like to donate directly. 

A day in the life of the Sweetland Family.
November 15, 2022
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A typical day for our family begins with 5am medications, incontinence care and liquid nutrition feedings. Ben often wakes up from seizure activity and is extremely aggressive and at times, violent. It takes both parents to maintain Ben as well as care for and homeschool their three children. Therapies and doctors appointments are riddled throughout each month between all 3 children. All three require specialized care. All three are on the Autism spectrum.  

Noon medications and lunch breaks consist of feeding struggles and sometimes hugs if we are lucky. Ben can be so loving when he isn't in pain. He has begun to lose some of his singing abilities due to the esophageal issues he has been dealing with. It's the only window we have to his inner voice. This once pitch perfect child is being silenced by illness, but we trust God and our wonderful medical team. We know he can beat the odds. We learned to use Ben's Echolalia as a means to communicate with him. By parroting sounds and songs, he tries to let us know what he needs. We usually have more appointments than we can handle, but take on anything we can to help the children have the care they need and deserve.

Dinner and bed time are difficult usually, but we do our best to make it fun. Noah and Ryley have their own health and neurological illnesses. We juggle everyone's needs, despite how difficult it can be. Ben's siblings are so supportive of their brother. Each takes time to play with Ben and watch movies with him. On good nights, we pile onto our bed and watch movies. On bad nights, we do not sleep. We work through the night to provide round the clock care for Ben during his seizures and episodes. He is nearly 5 feet tall now and has really become hard to control, but we do the best we can and aim for his safety first. 

Everyday is a little different. Some are easier than others. As you can see, there is rarely time to work or hold jobs for now. Caregiver/staff are in high demand, but currently not an option for us. Hopefully, we will have some respite in the near future, but for now we remain diligent to our children. We need your support more than ever. Thank you for taking the time to hear our story. 

 


Update #3
November 15, 2022
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Update #2
November 15, 2022
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Update #1
November 15, 2022
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I wanted to provide a little bit of his background. While we understand that people are not entitled to this info, we want to remain as transparent as possible. 

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