Campaign Created by: The Sweetland Family
The funds from this campaign will be received by Christina Sweetland.
Goal:
USD $8,000
Raised:
USD $ 1,075
Ben is one of three children in the home that have Autism and are medically compromised by genetic conditions. Ben, Ryley and Noah, require countless hours of physical and occupational therapy, physical therapy, speech therapy, ABA as well as neverending doctors appointments. After being pushed into homelessness due to the economy, the family of 6 now resides in their 23 year old Class C motorhome that is in need of major repairs. They travel for medical needs and for work. Due to health conditions, the children can no longer attend regular school. The family has opened a Christian homeschool, Sweetland Academy. They are amazing children who love the Lord and deserve support. All of this has taken a huge toll on the families finances. Due to the ongoing needs of the children, the parents have nearly lost their family business (Sweetland Repair & Low Voltage LLC). Ben requires 24/7 care and is often to much for one person alone. There is no respite available for him. His innovations waiver will take years or even a decade in NC. His medical condition is worsening and the family cannot get the help they need. The family has depleted ALL of their savings, stocks, assets and are not eligible for unemployment, as they own their own business. The Govt has turned their backs on them because they try to not live solely off of the govt. Those who are like their son have been met with nothing, but excuses and delays.
UPDATES
Update #10
March 13, 2023
We want to live in a world where children are loved and valued. We want to live in a world that allows access to medical care without the risk of financial despair. It should never be this hard to care for medically fragile children, without losing everything you have. We pray that our little ones will melt your heart and give you hope. Through all their hardships, they remain happy and amazing children. Each child is talented and has special gifts. Help us maintain the course while we navigate the obstacles ahead.
This is one of Noah's adorable drawings!
Update #10
March 13, 2023
We want to live in a world where children are loved and valued. We want to live in a world that allows access to medical care without the risk of financial despair. It should never be this hard to care for medically fragile children, without losing everything you have. We pray that our little ones will melt your heart and give you hope. Through all their hardships, they remain happy and amazing children. Each child is talented and has special gifts. Help us maintain the course while we navigate the obstacles ahead.
This is one of Noah's adorable drawings!
Mom was T-boned on Dec 13th. The truck was a total loss, but was still financed.
January 3, 2023
On Dec 13th 2022, Christina was t-boned after their vehicle stalled and sent them into oncoming traffic. Vehicle is a total loss, but was still financed. The family is now left with no vehicle and will have put 10k into a loan with nothing to show for it. We have no idea why we are under attack, but the devil is trying to destroy us. Ben has been signed up for the Make a Wish Foundation. His health is compromised and we are waiting for additional tests to come back. We ask for your support and prayers during this time.
Our Sweet Boy will need to stay to continue treatment until March.
December 13, 2022
We have the opportunity to stay through March but will need your assistance to do so. We have applied for every service possible, but not one single program has followed through on their promises and offers. This shouldn't surprise anyone, as the govt will never care about families like mine. I can only pray that we mean something to someone somewhere. Ben's genetic testing is being used to help his younger brother and others who suffer from the same gene deletion. We know God can heal and pray that's His will. However, children don't always get better, but God can use their lives to help others and we hope that Ben can be a light unto the world, just as he has been a light in our family. We ask for your support.
Update #11
November 30, 2022
Update #10
November 30, 2022
Medical
November 30, 2022
I wanted to provide a little bit of his background. While we understand that people are not entitled to this info, we want to remain as transparent as possible.
Meet the Sweetland Family
November 29, 2022
We are the Sweetland's. We have 4 children; Viktor, Logan, Ryley, Ben and Noah.
Ryan and I own Sweetland Repair & Low Voltage LLC. We specialize in smart home setups for disabled and special needs clients as well as standard ResCom clients. We have been unable to book appts due to the round the clock care that is needed for Ben and Noah. We homeschool three of the children due to their medical and safety needs. We ask for your support while we do our very best to provide the care and medical treatments that are desperately needed. Thank you for your prayers and support.
Our Sweet Boy
November 23, 2022
See Ben though our eyes.
https://m.facebook.com/story.php?story_fbid=pfbid0zsJKHyVAcB6wSCJ4RgA74sn69Css1e5Xc2SHQ2rTc5BArj1mpBefkJzbGu2Tajphl&id=100001223963497&mibextid=Nif5oz
#GivingTuesday
November 21, 2022
Please consider our family for your #GivingTuesday donation. Thank you so much.
A day in the life of the Sweetland Family.
November 15, 2022
A typical day for our family begins with 5am medications, incontinence care and liquid nutrition feedings. Ben often wakes up from seizure activity and is extremely aggressive and at times, violent. It takes both parents to maintain Ben as well as care for and homeschool their three children. Therapies and doctors appointments are riddled throughout each month between all 3 children. All three require specialized care. All three are on the Autism spectrum.
Noon medications and lunch breaks consist of feeding struggles and sometimes hugs if we are lucky. Ben can be so loving when he isn't in pain. He has begun to lose some of his singing abilities due to the esophageal issues he has been dealing with. It's the only window we have to his inner voice. This once pitch perfect child is being silenced by illness, but we trust God and our wonderful medical team. We know he can beat the odds. We learned to use Ben's Echolalia as a means to communicate with him. By parroting sounds and songs, he tries to let us know what he needs. We usually have more appointments than we can handle, but take on anything we can to help the children have the care they need and deserve.
Dinner and bed time are difficult usually, but we do our best to make it fun. Noah and Ryley have their own health and neurological illnesses. We juggle everyone's needs, despite how difficult it can be. Ben's siblings are so supportive of their brother. Each takes time to play with Ben and watch movies with him. On good nights, we pile onto our bed and watch movies. On bad nights, we do not sleep. We work through the night to provide round the clock care for Ben during his seizures and episodes. He is nearly 5 feet tall now and has really become hard to control, but we do the best we can and aim for his safety first.
Everyday is a little different. Some are easier than others. As you can see, there is rarely time to work or hold jobs for now. Caregiver/staff are in high demand, but currently not an option for us. Hopefully, we will have some respite in the near future, but for now we remain diligent to our children. We need your support more than ever. Thank you for taking the time to hear our story.
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