Ian Romaine - DIPG WARRIOR

Campaign Created by: Jonathan Romaine

The funds from this campaign will be received by Jonathan Romaine.

Raised : USD $ 30,595

On April 23, 2022 the Lord relocated our family from Spain to Cincinnati, OH to seek medical attention for Ian's diagnosis of DIPG. Certainly this road has been grueling and difficult but we are thankful for family, friends and our church who have encouraged us along the way.  We find it difficult to express our raw feelings with words and we are thankful that our Heavenly Father knows our hearts. We have been encouraged by those who came to visit us as well as the many cards and care packages sent to us in a time of need.  The following video is a remembrance of our time in Cincinnati from April 23 through July 2, 2022.

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The Lord allowed Ian to experience a time of physical, emotional and spiritual rehabilitation while we stayed in Cincinnati receiving medical treatment through the hospital and joining the body of believers at the Oaks Church From April-July. We created the following video as a reminder to God’s grace and mercy in Ian’s life.  Ian fought hard to become stronger and he has taught us so many wonderful things through the obstacles that he has faced and overcome. As soon as he was able to stand on his own and score soccer goals he shared his desire to return to Spain so he could play with his friends and teammates that he misses so much. 


We departed Cincinnati seeing great improvement and Ian and we set a course to visit our families and spend bonding time together as a family through the month of July and two thirds now through August. We are grateful and blessed by God’s provision of beautiful memories made even though throughout the entire time he has suffered and we have seen a gradual decline of his health and his body deteriorating.  


Ian now cannot move his left arm or leg, his left leg is in pain if he tries to support himself standing, he is unable to use the posterior walker that he very recently would push away to walk unassisted, his right eye is red and he is unable to close it, his appetite has decreased and has lost the feeling inside one side of his mouth causing him to chew slower and need softer foods, he drools constantly.  This is what he has been experiencing these last weeks and we are advised that his journey will get harder.  


We assume now that his tumor is aggressively growing and we go through the day one moment at a time.  Despite how disheartening and emotionally painful it is to see Ian going through this we are thankful that He is staying strong and doing his best.  He apologizes quickly when he gets frustrated when he isn’t understood. We see the Holy Spirit working in Ian’s life and giving him the strength through these burdens that we ourselves cannot bear for him. 


We are physically and emotionally exhausted each day and can only depend on God’s grace and mercy through this turmoil.  We find our soul quenched with David’s groaning to the Lord in the Psalms and it has been bonding for us and the children to devote ourselves to the truths that God hears our cries and knows the anguish in our hearts.  


If we don’t look back and purpose to see God’s hand and providence in our life we will miss seeing just how much He is lavishing his love on us today and that He will give us His grace to endure the narrow way ahead. We cry unto the Lord and He hears us and knows our grief.  He alone can relate to our agony and pain. (Ps. 22:23-24) (We are not Israel but we can appreciate the faithfulness of our Heavenly Father to his church today).

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Ian’s Medical Progress:

https://youtu.be/3gLUrVrDhok


Times of Encouragement:

https://youtu.be/QT7dzJiq9Ig

 

A Dude Perfect Encouragement:

https://youtu.be/xOxaef8xWxw

 

Ian’s Baptism:
https://youtu.be/BoqQqhnBK6s


Ian’s Final day of Radiation:
https://youtu.be/yfnaqLX5bPc


Watch Ian's DIPG Brain cancer Discovery Video:
https://youtu.be/6jG4chLhrSs


Go to Ian's Website updates

Our current financial needs: 

  1. Funds to cover nutritional supplements and Integrated medicines to maximize Ian's quality of life.
  2. Funds to cover special activities, adventures, entertainment for Ian and the whole family to promote our memories as a family and the time we have together.
  3. Funds to cover campground & hotel reservations while on our adventures.
  4. Funds to cover fuel costs & vehicle expense for the transportation and use of a van and motorhome(9/mpg). We praise the Lord that both of these vehicles have generously been provided for us to use.
  5. Funds to cover air travel expenses in August
  6. Funds to cover personal items & future unknown costs as our family settles down to care for Ian since since coming from Spain.

At this time we are requesting financial gifts that will simply be received as gifts to our family in order to meet our personal requested needs. All gifts given to us directly will be received strictly as a gift.


While our family was serving as church planters in Logroño, Spain, we experienced a medical emergency with our son Ian, who was diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma) on April 20, 2022. He immediately received care in Spain while God graciously helped us organize a medical evacuation flight, for Ian & Jonathan, to Children's Hospital in Cincinnati, Ohio, on April 23. Through the support of our church and Logroño team Hannah, Addaline and Mina were able to travel from Logroño, Spain and arrive to the Hospital in Cincinnati the same day.


Our future itinerary:

On Aug. 21-27 our family will be making a trip to Hawaii to fulfill Ian’s Make-a-Wish.  After this trip we will make our way to Surry County, NC to settle our family down and find stability in a home provided to us by a fellow member of our local church. 


Although we are able to make plans we are taking each day one at a time managing Ian's symptoms and providing him medical attention as need.

UPDATES

Looking back at the blessings of the Lord
August 20, 2022
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updateImage
The Lord allowed Ian to experience a time of physical, emotional and spiritual rehabilitation while we stayed in Cincinnati receiving medical treatment through the hospital and joining the body of believers at the Oaks Church From April-July. We created the following video as a reminder to God’s grace and mercy in Ian’s life.  Ian fought hard to become stronger and he has taught us so many wonderful things through the obstacles that he has faced and overcome. As soon as he was able to stand on his own and score soccer goals he shared his desire to return to Spain so he could play with his friends and teammates that he misses so much. 

We departed Cincinnati seeing great improvement and Ian and we set a course to visit our families and spend bonding time together as a family through the month of July and two thirds now through August. We are grateful and blessed by God’s provision of beautiful memories made even though throughout the entire time he has suffered and we have seen a gradual decline of his health and his body deteriorating. 

Ian now cannot move his left arm or leg, his left leg is in pain if he tries to support himself standing, he is unable to use the posterior walker that he very recently would push away to walk unassisted, his right eye is red and he is unable to close it, his appetite has decreased and has lost the feeling inside one side of his mouth causing him to chew slower and need softer foods, he drools constantly.  This is what he has been experiencing these last weeks and we are advised that his journey will get harder.  

We assume now that his tumor is aggressively growing and we go through the day one moment at a time.  Despite how disheartening and emotionally painful it is to see Ian going through this we are thankful that He is staying strong and doing his best.  He apologizes quickly when he gets frustrated when he isn’t understood. We see the Holy Spirit working in Ian’s life and giving him the strength through these burdens that we ourselves cannot bear for him. 

We are physically and emotionally exhausted each day and can only depend on God’s grace and mercy through this turmoil.  We find our soul quenched with David’s groaning to the Lord in the Psalms and it has been bonding for us and the children to devote ourselves to the truths that God hears our cries and knows the anguish in our hearts.  

If we don’t look back and purpose to see God’s hand and providence in our life we will miss seeing just how much He is lavishing his love on us today and that He will give us His grace to endure the narrow way ahead. We cry unto the Lord and He hears us and knows our grief.  He alone can relate to our agony and pain. (Ps. 22:23-24) (We are not Israel but we can appreciate the faithfulness of our Heavenly Father to his church today).

A Time of Encouragement
July 29, 2022
facebook twitter

On April 23, 2022 the Lord relocated our family from Spain to Cincinnati, OH to seek medical attention for Ian's diagnosis of DIPG. Certainly this road has been grueling and difficult but we are thankful for family, friends and our church who have encouraged us along the way.  We find it difficult to express our raw feelings with words and we are thankful that our Heavenly Father knows our hearts. We have been encouraged by those who came to visit us as well as the many cards and care packages sent to us in a time of need.  The following video is a remembrance of our time in Cincinnati from April 23 through July 2, 2022.

A Time of Encouragement

A Dude Perfect Encouragement
July 7, 2022
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updateImage

Romaine Dude Perfect Encouragement

On June 25th the Dude Perfect team showed up to the Rupp arena in Lexington, KY as part of their "That's Happy" tour this summer.  Ian and the entire family were given tickets by Platform Tickets, their event coordinators. They also got us VIP tickets for a "meet & greet" with the entire group.  We were asked to wait until last because the DP team wanted to spend extra time with us.  We had about 15 minutes of their time talking and enjoying a time of fellowship with them. The sweetest time with them was gathering around and praying for Ian.  There wasn't a dry eye left in the room and it really touched our hearts of the testimony this group has for the Lord. 

The event show was wonderful and at the end Tyler shared a little of their testimony and faith in Christ.  The following video explains more about his faith in Christ:

What they believe:
https://dudeperfect.com/video/what-we-believe

The Rupp Arena coordinators also gave us VIP tickets to enjoy some food, games and a relaxing time prior to the event which was a wonderful experience.

(We had tickets to see this group last summer, while on furlough, but the tour was cancelled due to Covid. This is a family friendly group of guys who love to have fun while also spreading the love of Jesus.)

Ian forsaking everything this life has to offer to follow Jesus!
June 20, 2022
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We are overwhelmed with unspeakable joy for Ian's step of obedience to the Lord by partaking in believers baptism.  We are so grateful for The Oaks Church, a church plant in Cincinnati, OH, that our family has been able to be a part of while we have been receiving medical treatment and care for Ian.  The Oaks have been a huge blessing to our family and it has been beautiful for our family to worship and grow in God´s Word with them.  

We also want to thank our own Pastor Kivett, Clayton, Cynthia and Logan Richer, and Jacob & Taylor Smith for visiting with us and joining with us as witnesses of Ian's baptism.

To God be the glory.

1 Corinthians 15:57-58

But thanks be to God, who gives us the victory through our Lord Jesus Christ. Therefore, my beloved brothers, be steadfast, immovable, always abounding in the work of the Lord, knowing that in the Lord your labor is not in vain.


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