Support Lukas' Battle Against Leukemia

Goal:

 USD $50,000

Raised:

 USD $2,535

Campaign created by Rachel Neuner

Campaign funds will be received by Jessica Hagenhoff

Support Lukas' Battle Against Leukemia

Hi! I'm a friend of the Hagenhoff Family. We threw a Poker Run for Lukas and his family last year to help raise money for their medical expenses, monthly bills, traveling expenses, etc., while Lukas received his treatments. Lukas was born a Heart Warrior, something myself, my family, and daughter are very familiar with. I know from experience how stressful it can get - emotionally, physically, and most especially financially. With Lukas, I can't even imagine the stress that the Hagenhoff's go through because on top of his heart conditions, he has his Down Syndrome, which requires him to see 7 different specialists, some of them weekly.

Here is where the fundraiser comes in. As if Lukas hasn't been through enough, last week he was diagnosed with Leukemia. They are not sure what stage yet. He is still waiting to get his bone marrow in the next few days. This is going to be a very long and intensive journey for Lukas and all of his loved ones. Lets help them have just one less thing to worry about so they can put all of their strength and energy into what matters - Lukas, not stressing about medical costs for treatment, monthly bills, if they have enough to put food on the table, etc. I know that $50,000 sounds like a lot, but it costs roughly $35,000 to treat Leukemia in Missouri. Then, once Lukas is in remission, it’s another estimated $17,000 just for follow up care. Help us support them however you can. It doesn't have to be $100 or $50 or $20 or even $10 - whatever you can contribute means the world to them. If you can't afford to donate anything, then just share this fundraiser. Let's help this beautiful and overly kind family as much as possible. This baby has been through way too much as is.


Recent Donations
Show:
Patty Williamson
$ 10.00 USD
1 day ago

I had no idea Lukas was going through leukemia and chemo but so glad he's in remission! I consider this, support of our 2 Compassion International girls and support of K-Love to be part of our monthly tithing. God bless you all!

Connie Tebbe
$ 50.00 USD
11 days ago

Many prayers for Lukas and your family.

Mary and Steve Everingham
$ 50.00 USD
15 days ago

Great families, wonderful people. God Bless.

Rosie LaRocca
$ 25.00 USD
1 month ago

Patty Williamson
$ 10.00 USD
1 month ago

I had no idea Lukas was going through leukemia and chemo but so glad he's in remission! I consider this, support of our 2 Compassion International girls and support of K-Love to be part of our monthly tithing. God bless you all!

Anonymous Giver
$ 50.00 USD
1 month ago

Merry Christmas, Blessings and Prayers

Heather and Brian
$ 50.00 USD
2 months ago

Anonymous Giver
$ 50.00 USD
2 months ago

Always in our thoughts and prayers!

The Mathews
$ 50.00 USD
2 months ago

With love

Kate Wright
$ 50.00 USD
2 months ago

Peters Family
$ 50.00 USD
2 months ago

Hugs and prayers

Anonymous Giver
$ 40.00 USD
2 months ago

Praying for you all

Jasmine Harris and Family
$ 50.00 USD
2 months ago

Ware Family
$ 50.00 USD
3 months ago

Praying for strength and comple restore of health for Lukas and his family 💙

Conaway Family
$ 50.00 USD
3 months ago

Thinking of and praying for all of you! ❤️

Ashley ORourke
$ 100.00 USD
4 months ago

Anonymous Giver
$ 100.00 USD
4 months ago

Mary Everingham
$ 75.00 USD
4 months ago

Anonymous Giver
$ 100.00 USD
4 months ago

DHJ
$ 50.00 USD
4 months ago

Updates

Update #2

January 31st, 2025

Hi, first I want to thank everyone for their support thus far, secondly, I want to apologize for not being good at making updates. I want to be the mom that is on it, and prior to this, I kinda was the type to be able to type out long, thought out updates and blogs. Alas, I've been in such a survivor mode since the diagnosis,  that I don't have the mental capacity to put thoughts into words. 


Lukas is doing good with his treatments. He is growing and learning and just blowing our minds every day with what he can do. 

He is a fighter. So so strong and determined.  Nothing is going to stop him, and IF it slows him down, he fights that much harder to get back on pace. 

Yesterday we found out that his next cycle will be another 28 day 24/7 port chemotherapy.  We'll be in paitent for 3 days to ensure he has all the help he needs as this one usually causes fevers for the first 3 days. (last time it ended up being 5 days of fevering)  Luckily, this one doesn't usually cause other side effects though as it's not one that suppresses your immune system.  

We get 2.5 weeks off from chemo, which will be great, before he goes back for his 3 day stay and start of the new round. 

Let's see, more updates for those that didn't know. Lukas turned 3!! Our New Years Eve baby turned 3 on the last day of the year, which seems impossible! It also meant that he aged out of First Steps, which was an amazing program we got to be a part of for his physical,  occupational, and speech therapies. 

So since he aged out he has been able to start preschool.  That's right, our baby is now a big preschooler!! 

He only goes 2 days a week, from 8-11, but it's a great start and we are so excited to see how he does. 

He also started pt at a new place and will be starting ot soon and doing more speech therapy with a place he's been going already. 

So we are busy as ever! 

Jensen is doing great, growing like a weed and Abigail is learning the new life of palete expansion and braces. It's been a unpleasant week because she's struggling with eating her favorite foods and the pain of her new mouth accessories,  but she's also done so well.  

I'm one proud (and tired)mama! 

Thank you again for your generosity and more importantly, your prayers. If you could please continue sharing this fundraiser we would be so grateful.  Times are tough for us all, Lukas may be extra, but he really doesn't mean to be SOOOOOO expensive. Haha

Update Update #2 Image
Update #1

October 24th, 2024

Update:

For those that don't know, Lukas goy the official call on Oct 16th that he is in remission!!!


Praise God!!!!


However this is not "behind" us. Lukas will continue to receive chemotherapy for the next 2-3 years. This is to prevent relapse. 

He had his first chemotherapy on Monday for this "consolidation " phase. It consists weekly IV chemo infusions (1 a week for 4 weeks) at the children's cancer center, 3 times a month lumbar puncture/spinal infused chemotherapy, and a chemotherapy drug at home every night via his g-tube (for 4 weeks)

At the end of this consolidation phase we'll go over what the next phase will be. 

Sounds like it may be a chemotherapy that puts us back in the hospital 3 or 4 times for 3 days at a time. 

Then at some point he's going to be getting 24/7 pump chemo that he has to wear a little backpack for when he's not sleeping or in the bath. 

The intensive chemo should cut back drastically in 6-8 months, based off of his counts, so sometime between March and May. Then he'll just need to be going for inpatient once a month. 


This is all fluid, as Lukas's body may require breaks so we don't make him too sick/worn down. 


Please keep the prayers coming that we keep Lukas safe and protected from viruses and keep the prayers coming for his strength and continued remission! 


Through God we will succeed!!


Please share, anything at all helps as I've not been able to really work since Lukas was born due to his specialty appointments and therapies.

Update Update #1 Image

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