Update: A Glimpse of the Truth – And the Long Road Ahead

Hi everyone,

I wanted to give you an honest update following a recent consultation with spinal surgeon Dr Nigel Kellow. After years of pain, misdirection, and countless appointments, this was the first time a specialist took a hard look at my case and said—something doesn’t add up.

He believes it’s extremely rare to have CRPS presenting the way mine does and suspects that I may actually be living with Failed Post-Spinal Fusion Syndrome—a complication from the surgery I had at L5-S1. He’s asked to personally review my MRI scans, and he noted the discolouration in my right glute may even be linked to how much time I’m forced to spend lying down.

This isn’t just a paper diagnosis. I’m bed bound for up to 20 hours a day, relying on adaptations just to move through the basics of life. I still fight to walk the dog, get in my gym sessions with altered training, and keep Carnivore Muscle going online—but none of it’s easy. Yesterday, I had a coaching client and friend come a long way to visit me. Today I experienced excruciating pain, waiting for a bus, with no acceptable seating when waiting around. Lesson-learned, get an Uber next time... Even then, I may have to wait a long time! Behind the scenes, this has affected every part of my life: relationships, my mental health, future family dreams, income, and even my ability to stand without searing pain.

To make matters worse, the pain clinic still can’t access my records due to a technical system glitch—and my GP hasn't sent them manually, despite knowing how urgent this is. It’s another delay in a system that keeps breaking its promises, while my condition becomes harder to treat.

Your support so far has meant the world. You’ve helped me access supplements, diagnostics, and resources that keep me in the fight. But as I head toward potential private interventions, legal action, and months more of uncertain care, I’ll need your support more than ever.

If you’re reading this, thank you—for standing with me. I refuse to disappear into the cracks of the system. I want to heal, to compete until I'm 100, to support others through this hell, and to tell the truth about how people with pain and disability are being ignored. We are possibly looking at an additional 'revision surgery' and spinal cord stimulator as a best-case scenario.

Let’s keep pushing forward—one step, one scan, one rep at a time.

With sincere gratitude and resilience,

Jonathan Griffiths

Carnivore Muscle 💪🏼

Update #1 – A Heartfelt Thank You & What’s Next

Dear everyone who’s donated and supported me so far,

I want to begin this first update with a truly heartfelt thank you. Your generosity and kindness have already made a real, measurable difference in my life—and I want to let you know exactly how.

Because of your support, I’ve now been able to:

Pay for key medications to help manage CRPS, autism, and chronic fatigue

Access transport more easily, so I can get to essential appointments without putting myself at further risk

Begin looking into hiring a care assistant for 2 hours a week to help with physically damaging tasks like tidying, grooming, and organising—something I’ve never been able to do before

Start a subsidised Amazon subscription for essentials like pain relief creams, symptom-targeted supplements, and practical daily items

Purchase a support cushion and a camera mount, allowing me to film and livestream without worsening my spinal pain

Begin sourcing sturdier furniture so I can properly store my medications, supplements, and biohacks in a safer and more organised way

That said, I want to be clear—I’m still not receiving any government help. My pain clinic referral remains untouched, and I continue to be left in limbo by the very systems meant to support people like me. Despite doing everything I can to keep pushing forward, my YouTube videos are struggling to reach the audience they once did, and income from content creation is currently very low.

This journey is far from over, and your ongoing support is still essential. Every donation helps me preserve energy, manage pain, and continue sharing the message of healing and strength through carnivore nutrition.

Thank you again—for helping me stand a little taller in the fire.

With gratitude and fight,

Jonathan

Carnivore Muscle