Supporting Jackson Kelley Family

Monthly Goal:

 USD $50,000

Total Raised:

 USD $3,890

Raised this month:

 USD $0

Campaign created by Barbara

Campaign funds will be received by Erica Kelley

Supporting Jackson Kelley Family

Recently my oldest Grandson Jackson Kelley had a second MAJOR episode that left him with paralysis of his right side and unable to speak for the last 13 days including 6 days in the hospital. Unfortunately, this episode is only one of a series of medical events that started in 2021 with a seemingly minor reaction that was classified as a hemiplegic migraine and eventually led to the first major event/seizure/hospitalization during a school football practice in 2022. At that time calcification of the basil ganglia was suspected to have caused the event and genetic testing was used to rule out some of the more serious degenerative diseases but with no real answers to root causes of the additional events. Since then Jackson has 12-14 hemi episodes a year that range in severity. The brain calcification has been monitored by yearly MRI’s to ensure no new growth. This latest episode has placed a new burden and urgency to understand and find out what is the root cause and prevent another MAJOR event like this. More genetic testing and outreach to resources that can help uncover this rare genetic disorder will continue to be sought as Jackson heals and gets back to himself. We fully expect him to recover all function but it will take time and energy and resources. Many people have reached out to ask how they can help. Ian and Erica Appreciate each and every offer of meals, and care for Jackson, distraction for his brothers and even watching their dog Ginger! At this time i am setting up this fund to help with the medical costs of the hospital stays, genetic testing( which can cost tens of thousands of dollars) and most of the time NOT covered by insurance and the time/work that they will be focused on Jackson’s recovery which will mean less hours on their current primary jobs. I have no idea how much it will cost but i know any amount of resource that allows them to breathe a little easier with peace the financial burden is a little lighter would be so appreciated. Please consider donating financially if you feel led but if you know my daughter at all you know she believes your prayers are 10x more important and powerful so please keep praying for answers and healing! ❤️‍🩹 Love- ( Jackson’s Nana)

Recent Donations
Show:
Lori Schmidt
$ 50.00 USD
2 months ago

Praying for a complete healing

Michelle Albert
$ 100.00 USD
2 months ago

Borrello Family
$ 75.00 USD
2 months ago

Sending love and prayers daily

Vikki Williams and family
$ 100.00 USD
3 months ago

Prayers for Jackson, and family!

The Stein Family
$ 500.00 USD
3 months ago

Hugs from Shaun, Kelley & Soren Stein. Stay strong and positive Jackson!!

Brandy and Farrah
$ 500.00 USD
3 months ago

Prayers for Jackson and a full recovery. And prayers for all of your family during this very difficult times.

Langfords
$ 100.00 USD
3 months ago

Praying for y'all so much

Anonymous Giver
$ 100.00 USD
3 months ago

Sending love and prayers to the Kelley family. You are in my thoughts daily.

Anonymous Giver
$ 10.00 USD
3 months ago

Wishing you all the best. Praying God reveals the cause of your grandson's ailments through testing.

Frank Family
$ 100.00 USD
3 months ago

We are praying for Jackson and your sweet family.

Anonymous Giver
$ 50.00 USD
3 months ago

Praying continuously for you guys & trusting God for his mercy indures forever.

Jessica Grider
$ 100.00 USD
3 months ago

Praying for your sweet boy and that his doctors are able diagnose and treat him into making a full recovery. God has big plans for Jackson

Theresa Mathis
$ 100.00 USD
3 months ago

Sheri Lycan
$ 200.00 USD
3 months ago

Praying for you Jackson and all of you. My family, love you always.

Anonymous Giver
$ 75.00 USD
3 months ago

Although our paths do not cross often, I always appreciate your friendship. My prayers for answers, patience, and full recovery are with y’all

Karen Klonoski
$ 50.00 USD
3 months ago

Thoughts and prayers being sent your way.

Kandi and Carl Taskey
$ 100.00 USD
3 months ago

Our prayers continue for your beautiful family, please please let me know if I can help in any way at all!

Power Moves Electric LLC
$ 250.00 USD
3 months ago

Praying for you all. Jackson: Just know - You’ve got that DAWG in you!

Jenn Wheeler
$ 50.00 USD
3 months ago

Thoughts and prayers with you all.

Tuttle Family
$ 100.00 USD
3 months ago

Our prayers are with Jackson and all of you!! Sending all our love to you all!

Updates

Update #1 Long Time Coming

January 27th, 2025

Hi Friends, 

I wanted to first off THANK each and every one of you have financially given to Jackson and our family over the past two months.  It has been a roller coaster to say the least but the tremendous amount of love and support that has poured out over us and Jackson has been nothing less than incredible to experience. 

I am sorry it has taken so long to update on here but I have been trying to do it on my facebook page so if we aren't friends please friend me and follow along. I don't know how entertaining it is but i do occasionally force Jackson to go live with me and answer questions about his journey of healing. 

So here we are on 1.27.25 exactly two months from the date we found Jackson in the bathroom barely responding. This was not the first time we had experienced this stroke-like event before but it was the first time he had been physically sick with vomitting all over his room. We would give him the normal protocol of medicine we had given 2-3 times a month which was his average episodes and put him back to bed with the hopes this would pass fairly quickly like the rest with sleep.  That was not to be the case.  

Jackson did not speak one more word until 17 days later. He lost the ability to talk, walk, move his right arm, swallow even water and had to have help for everything.  He would be admitted to the hospital for a week and after 2 weeks he was able to start moving his right arm and right leg. That felt like a miracle!  That one word came once we got home and slowly turned into a couple many without the right context and funny from not knowing what a sock was ( he called it money) or a cup(classic)  or my name(he got close with Gerica).  He made up names for friends like "cat food" which has now stuck as a nick name. Sorry Dalton! and called his brother Lincoln Lougy.

He would slowly relearn how to  walk, talk, eat, drink, drive, read, text, and even work the remote over the next 4 weeks and by the grace of God he went back to public school( he had been doing online school) on Jan. 6th 2025.

He is now doing all of those things including driving, working and hanging out with his friends. He still struggles to find the words sometimes and he still gets very tired at the end of long days which makes his words (and brain) slow down which can be super scary for his father and I as we watch for every sign of another episode. 

We do not have a diagnose from the neurologist, we simply know that he has hemiplegic migraines which are not what you think they are.  Migraines are genetic and do not have to do with pain although some migraners have pain associated with their events. Migraine brains require more energy( electrolytes-sodium/salt) then those without migraines. They also do much better eating  high fat high protein  almost no carbs due to the brain desired source of fuel(fat). 

So our journey now is to feed him nice juicy red meat full of the complete essential amino acids to help him heal and to keep him as hydrated as possible with lots of salt in his water.  Everything else is a wait and see game. We are praying that he grows out of any seizure related events and that this new focus on way of eating and salt intake will keep us event free for months and months.  

Last episode was Jan 1 2025 so we are hopeful to pass the one month mark on 02/01/2025!  Prayers are welcome and requested for full and total restoration for Jackson and that this part of his testimony is used to encourage others going through the darkness of not knowing why but trusting that God knows and has not left his side or our side.  Isaiah 40:28 He does not grow weary of our prayers and petitions. 

We love and thank you all for your daily encouragement and prayers! 


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