September 19th, she had her PICC Line inserted at around 11am. She did very well, and did not go cold/drop in heart rate. We were informed that she has lost 10% of her birth weight, (which is normal) and that they expect these things to happen. She is now currently 1lb and 8oz.

September 20th, Evangeline has her head ultrasound done in the morning, and her scan showed that nothing is wrong, as well as no brain bleed. We are now allowed to start skin to skin contact as soon as we’re done being sick! We were informed that in a couple of days they will be removing the PICC Line due to how well she is developing/progressing.

September 21st, Evangeline is digesting the donor milk very well and still passing stool with good urine output. She has increased in weight and is now 1lb and 11oz. If everything goes good by Monday they will be removing the PICC Line. Her weight will be checked tonight, and the night time nurse, Chelsea, has made a scrapbook collage with her footprints. It’s currently hanging from her IV post, waiting for us to see when we finish being sick. Overnight she gained 1oz and is currently 1lb 12oz.

September 22nd, we were informed that her hemoglobin level had dropped to 30, and that they need to do a blood transfusion through the PICC Line. We were also informed that she needs to go up on her oxygen via CPAP BUBBLER. Other than that, vitals are pretty stable, and she seems to be taking well to treatment.

September 24th, we were informed that Eva has an open duct on her heart and they were going to be administering medicine to Evangeline to close the hole. We were also told she’s not ready to come off of her PICC Line yet. They’ve also increased her feeds from 12ML to 14ML and she’s now receiving 24 calories a day at this point. She’s also gaining in weight, she’s almost 2lbs!

September 27th, they did a scan on her chest and there is still an open duct on her heart. They are administering her Tylenol to help try and close the duct. She is also on caffeine to remind her to breathe/wake up because sometimes she forgets, which is common due to all the work she’s already been doing. This evening she was taken off the CPAP Bubbler and switched back to the nose mask, due to trouble breathing.

September 28th, she has stabilized over night and is doing well this morning. The doctor believes that going up on the breathing support and administering the Tylenol may have helped her stabilized. They said we could start skin to skin again today if she doesn’t have any more desaturation episodes. She hasn’t been handling the last couple of feedings that well. The plan is to see if she does well for the next 2 days on her feedings, and if she does then they can finally remove her PICC Line because she will no longer need IV Fluids. The doctor has told us that even though she is having her ups and downs, she’s still improving every time they have to support her in some way. Which is really really good.

September 30th, Eva has dropped back down to 1lb 14oz, but usually that’s normal because the weight fluctuates. She’s had multiple desaturation episodes, so they’ve inserted an IV on the left hand, and one on the back of the right ankle. She’s receiving another blood transfusion because her hemoglobin dropped again, so they’ve stopped the feeds until tomorrow morning at 11AM. They administered antibiotics just in case of infection, and we were also informed she’s been having a lot of air in her stomach. Care time is now 8AM, 11AM, 2PM, and 5AM because she is starting to get bigger.

This campaign is unpublished.