She is continuing to have episodes and they are getting closer together. The Neurologist is wanted to start a caffeine trial to treat for Narcolepsy.

He said that her symptoms are consistent with that but that they see it in 10 out of 100,000 children over the age of 5. That they have never seen it in someone her age and that if this is truly narcolepsy it would be one of the first cases documented.

We are still waiting for electrocardiogram to happen and for blood gasses and pneumonia test to come back.

We also informed the Doctor about the migraines Heather has and how Ativan brings her out of them and that there are a lot of simalarities between hers and Elsie’s. She was going to talk with Neurologist and let us know.

Please continue to pray. We are left with more questions than answers and just want to see our happy bubbly baby back and get her home to her big sister Isla. Who is having a hard time with all of this.

Elsie has been smiling more today though than she has been durning her wake windows which has been a joy to see.

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