Please give ten dollars to give Nabil his life

Campaign Created by: Gregory Maytan

The funds from this campaign will be received by Gregory Maytan.

Goal: USD $100,000
Raised: USD $ 22,194

This is our dear 11-year-old son Nabil.

My name is Gregory and I'm fundraising for my 11-year old son Nabil. We have been fundraising for some time, but now we are in the position of urgently needing funds for a surgery that very likely will help him walk again and give him his life back. The surgery will cost $88,742 plus the days he spends in the hospital.

This moment marks the start of the 10 10 10,000 campaign. For the next 10 days (starting October 26) our goal is to try to find 10,000 people who will consider donating $10 to help my son get his life back.

We are asking everybody that sees this fundraiser to consider donating 10 EUR/USD/GPB and to share it with as many people as possible. You can help us get there. You can help my son leave his wheelchair behind and resume what is left of his childhood.

Nabil has been sick and has not been able to attend school since November 2021. Instead of playing with his friends and pursuing his interests (playing the piano and violin, soccer and attending chess coachings and tournaments) he sits in a wheelchair, unable to move his legs, unable to sit up unaided, and is tortured by constant headaches, sensitivity to sound and bodily pains. He is very underweight and has not attended school since November 2021. He needs help with everything from getting dressed to using the restroom.

After a long diagnostic journey, Nabil was finally diagnosed with tethered cord syndrome and hypermobile EDS. In essence, tethered cord is a disorder of the nervous system caused by tissue that attaches itself to the spinal cord and limits the movement of the spinal cord.

The only way to release the spine is through surgery. There will be many months of recovery and rehabilitation after the surgery where he will hopefully learn how to move his legs again. The doctors are clear that there are no promises and the success rate of the surgery does vary. They are also clear that he absolutely needs this surgery and he will only continue to get worse until he does. It is an exceedingly rare condition which is often misdiagnosed, especially in combination with EDS.

It is essential that Nabil be placed under the care of someone who has the necessary expertise and experience and who has seen cases with Nabil's symptoms. To our knowledge, only a handful of surgeons exist who specialize in tethered cord in combination with hypermobile EDS. Thankfully, we have found a wonderful surgeon at Brown University Hospital who has earned our complete trust. This surgeon is our best and probably only hope as things stand now.

The cost of the surgery is $88,742. On top of that there will be the costs for the hospital stay and the pre and post operation. Those depend on the success of the surgery and if any complications arise.

We are trying to raise funds to bring him to Brown, and additional funds help with the post-op rehabilitation. We can't and won't give up on Nabil. We desperately want to save our son but and time is running out. It is good to have this diagnosis but the battle is far from over. Many hard times continue to lie ahead.

We hope for nothing more than for Nabil to eventually recover and reclaim some independence. We wish for him to have the ability to play with his friends and pursue his interests instead of being confined in a wheelchair and completely dependent for all levels of activity/movement. We want him to have the freedom to move his legs, sit up unaided, speak and have a better quality of life that isn’t hindered by constant headaches, sensitivity to sound and bodily pains.

We implore you to do what you can to help Nabil. Even though the sum needed is overwhelming, please know that any amount you are able to give would be immensely appreciated.

Thank you from the bottom of our hearts.

Sandra and Gregory


December 4, 2023
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The day is finally here. Nabil will have the surgery tomorrow with Dr. Klinge at Hasbro Children's Hospital. There is no better doctor on the planet for this type of surgery.  If you are religious, I ask you to please pray for my son tomorrow.  Please pray that the surgery will make it possible for my son to someday walk again and have a normal life and that these awful two years of debilitating illness will start coming to an end.

It has been over two years since he was physically able to attend school. He is turning 12 in a little over one week. 

Thank you again so much for all your generous contributions towards this surgery and the upcoming recovery. I really can't thank all of you enough. 

Update #5
November 17, 2023
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Dear all, I just wanted to say a huge thank you to all of you who have donated towards my sons medical care so far. I know that the goal still might seem far away. That does not take away for how deeply and profoundly grateful I feel to all of you who have so generously donated so that my son someday might be able to move his legs and walk again. I thank all of you from the bottom of my heart. 

Update #4
October 26, 2023
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Dear all, we are now launching the 10 10 10,000 campaign along with a beautiful video about Nabil made by Justin Baldoni and his team. During the next 10 days we are looking for 10,000 people to donate 10 dollars towards Nabil's treatment because of his upcoming surgery.

Update #3
October 22, 2023
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Dear all, first of all, thank you all so much for your very generous and helpful donations. It is truly heartwarming that so many are willing to sacrifice so much to help my son. I'm sending out a video which a friend made for us, a video which tells Nabil's story through the eyes of his father with pictures of Nabil from before he got sick as well as after. I also wanted to say that we are now scheduled to have the surgery done towards the end of November. If you are OK sharing this fundraiser, please feel free to do so as we try to gradually reach our goal. Please remember that no amount is too small! 10,000 donations of $10 each would, in addition to what has already been donated, cover the trip, the surgery and the complete hospital stay. Thank you all so much!

Update #2
August 28, 2023
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I have just updated the fundraising text in light of new information. Nabil has been diagnosed with a tethered cord and will need surgery to correct it. The costs are staggering, but any little bit really helps. This boy has suffered for almost two years in ways most adults never do. The road ahead is still thorny and difficult.Thank you for your kind help and for continuing to share this fundraiser.

Update #1
July 3, 2023
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Please let me please thank you from the bottom of my heart for the donation you have made to help my son. Nabil is gaining a little weight and eating a lager variety of foods which is the good news. We no longer believe he is in any immediate danger even if he still can't walk, talk, sit up alone and still suffers from the most horrendous and constant headaches. Even though many things point to this being a vaccine injury, we notice that we need a more exact diagnosis of what exactly is going on in Nabil's body to be able to really help him. 

 Nabil recently told me that the hardest thing about being sick for him is that he is unable to help or do anything for other people. He burns with a desire to do good in the world. Almost two years of his childhood have been cruelly taken away from him. We do feel that time is really running out if he is still to have the chance of making a full recovery. If you have the possibility to continue helping him or to share this fundraiser please know we would be most grateful. Thank you so much and God Bless. 


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