Dear Friends and Supporters,

We are blessed to share an update on Mia Curtis, our courageous 3-year-old who continues to face her battle with Rasmussen’s syndrome with unwavering faith and strength. Just 1.5 weeks ago, through the grace of God, Mia underwent a significant brain surgery to disconnect the left side of her brain and remove the affected areas.

With God’s strength, Mia is now in rehab, showing incredible determination as she works to relearn vital skills like communication, walking, and using her right arm. We have witnessed many blessings in her recovery so far—Mia can now eat on her own, a beautiful milestone as she had to relearn how to swallow. She has been able to explore the hospital, go outside in her special chair, and even take a few steps with assistance, all guided by the Lord’s hand.

Mia’s journey is still long, and her family, Jen and Kevin, are deeply grateful for the continuous outpouring of love, prayers, and support from all of you. Your generosity has been a true blessing, lifting them up in their time of need and strengthening their faith in the Lord’s plan.

We kindly ask for your continued prayers for Mia’s healing and, if it is within your means, a donation to support her ongoing recovery. Every contribution is a gift from The Lord that brings Mia one step closer to healing and gives her family the strength to continue this journey.

Thank you for your love, prayers, and support. Together, with faith and the grace of God, we are helping Mia overcome these challenges. Let’s continue to walk this path with her, united in faith and hope.

God bless you all, and thank you for being a part of #MiaStrong.

In gratitude and faith,

Alicia & Michael Curry 

Miss Mia had her surgery today and her father posted this update to social media a few hours before completion. Again, Thank you all for your continued prayers and donations! Here is Kevin’s update: 

Update: Surgery is just about done with no complications, drainage port was placed to drain fluid from her brain, swelling and bruising is to be expected in the next couple of days.

Mia did end up needing some blood but other than that the Surgery was a Homerun! Once she is out of Surgery she will be getting a CT scan and will be placed in PACU.

More updates are to follow in the new few hours..... Again thank you all for your thoughts, prayers, and donations as we continue to toe the line with Rasmussen's!

We love you all and please continue to keep us in your prayers.

** This picture attached is Mia’s older brother Brady holding his sisters hand post surgery. So precious to melt your heart! 

Dear Friends and Supporters,

We want to share an important and emotional update about our brave little Mia Curtis. Our 3-year-old warrior is preparing to face a critical milestone in her journey against Rasmussen’s encephalitis. On Wednesday, August 21st, Mia will undergo a left hemispherectomy, a significant and complex surgical procedure.

Understanding the Surgery

A left hemispherectomy involves the removal and disconnection of the left side of Mia’s brain. This surgery is intended to stop the spread of the disease that has been affecting her brain and causing severe seizures. While this procedure is a profound step, it is necessary to give Mia the best chance at a healthier future and to help manage her symptoms more effectively. The surgery will be a tremendous challenge for Mia, her family, and her medical team.

The Road Ahead

Mia’s condition has progressively worsened over the past few months, impacting her ability to walk and perform daily activities. Her parents, Jen and Kevin Curtis, are navigating this difficult time with incredible courage and resilience. They are deeply touched by the overwhelming support and kindness they have received from all of you. Your messages, prayers, and support have been a beacon of hope for them during this incredibly challenging period.

A Note of Gratitude

Jen and Kevin are profoundly grateful for the generosity and compassion shown by everyone who has reached out to support them. They did not expect such an outpouring of kindness when the fundraiser was first created, and it has truly been a source of strength and comfort. Your support has been a powerful reminder that Mia and her family are not alone in this fight.

The Power of Community

As Mia faces this critical surgery, we ask you to continue sending your love, thoughts, and prayers. The strength of your support and the power of your positive thoughts are deeply appreciated. They provide comfort and hope to Mia and her family, reminding them that they are surrounded by a caring and compassionate community.

Thank you for being a part of Mia’s journey and for standing with her family during this pivotal time. Your continued support means the world to them and is helping to light the way through this challenging chapter.

July 22, 2024, marked another challenging day in Amelia's journey. She struggled with walking, often falling, and felt weakness and pain in her knee. Despite wearing a brace, her efforts to walk were in vain.

The quest for a second opinion has been tough, with insurance issues at Cleveland Clinic adding to the frustration. After persistent efforts and unpleasant exchanges, we secured an appointment at Cleveland Clinic for July 29, 2024, to discuss the next steps.

Amelia's condition worsened on July 23, 2024, as she lost the ability to walk entirely. She now experiences small seizures, each lasting less than a minute. The medical team is providing her with medication, and if there's no improvement, we might have to make a difficult trip to Cleveland.

Amidst the challenges, Amelia's spirit remains unbroken. We continue to hope and pray for her recovery and ask for your support and positive thoughts.

*attached you will find a recent photo of an outing with Mia on a good day*

This morning, Miss Mia was readmitted to Children’s Hospital of Pittsburgh. She has been stable and enjoying life, so this has come as a complete shock and frustration for her parents. Currently, the Cleveland Clinic has received her files and is actively reviewing her case for a second opinion. During this review, it came to their attention that Children's Hospital lost a crucial test containing her spinal fluid. This test was taken during an inpatient lumbar puncture (Mia's 5th puncture now) but was never sent to the Mayo Clinic for processing.

As you can imagine, this is immensely frustrating, causing Jen to miss a minimum of 3 days of pay due to their error.

But this is exactly why we created this fund for them. We trust that the Lord will sustain them financially and emotionally throughout this entire journey! Please PRAY for Mia as she undergoes another anesthetic procedure, that the doctors will securely DELIVER her fluids for the necessary testing for a proper diagnosis. Also, pray for Kevin and Jen - for God’s peace and comfort to surround them amidst this uncertainty, for a deeper hope in what’s to come, and for divine healing according to His will. Pray for wisdom and knowledge for Mia's doctors and nurses, and for guidance and provision through these circumstances.

Finally, please pray over this fundraiser. Pray that the Lord will continue to financially bless and sustain the Curtis family throughout this entire journey!

Thank you so much! Prayer is POWERFUL, and we deeply appreciate each one of you praying for Mia and the entire Curtis family!

Y'all are so generous! Thank you so much for your continued love and support for the Curtis Family!

I spoke with Jen today; she informed me that Mia did have a seizure while with her sitter. They managed it at home and are keeping a closer eye on her. Jen requests prayers that her seizure medication continues to work to prevent further seizures. They are grateful they could manage it at home, but as a mother, it's tough to handle.

This Friday, Mia will undergo a PET scan to check for hot spots on her brain due to seizures and seizure-like tendencies. Please pray for a successful outpatient procedure and that it provides answers.

Jen and Kevin have accepted a referral from the Cleveland Clinic for a second opinion for Mia. Currently, they are waiting for them to gather and review all of her medical records. Once completed, they will reach out with the next steps.

Please pray for wisdom and guidance as they continue this health journey, seeking healing options for their precious little girl. Thank you again for your continued love and support for the Curtis Family!

First, thank you to all who have prayed and/or given! It is such a blessing to the Curtis Family, more than you will ever know!

Yesterday, Miss Mia was able to go home with her family! Thank you, Jesus! She still has a long road ahead, as they will be having an upcoming outpatient PET scan. But at least she is home with both parents and her brothers.

Your continuous prayers and financial contributions are such a huge blessing and answer to prayer. May the Good Lord continue to financially and emotionally sustain Jen and Kevin through this health journey with their daughter, Mia.

“Continue steadfastly in prayer, being watchful in it with thanksgiving.”

‭‭Colossians‬ ‭4‬:‭2‬ ‭ESV‬