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I Was Not Hysterical

Goal$30,000 USD
Raised$0 USD

Fundraiser created byLu Mendonça

I Was Not Hysterical

Hi guys,

This is my first time doing something like this so here goes. Since my mid 20’s (I’m now 41) I’ve had excruciating muscle pain every time I worked out. That pain led me to every supplement and doctor’s appointment imaginable. I was quickly labeled as psychosomatic and “crazy”. I was told there was nothing physically wrong with me and that it was all in my head. I was so mad at myself and perceived my mind as “weak”. I tried antidepressants and anti anxiety medication but I still had the pain. I started losing weight and my livelihood. Slowly I stopped going out as much. Anything that caused me pain- I suffered through. Nothing helped. I was told I was “deconditioned”. I was adamant that I would fight through the pain until I became “conditioned” once more. Unfortunately that never came. In 2020 I was exposed to Covid. My once normal blood pressures and heart rates were all of a sudden elevated like crazy. That was downplayed (of course). It’s now 2026 and I finally have SOME answers. After switching hospital systems, I had to fight through the labels put on me by the previous hospital system. Words like “anxious” and phrases like “most likely psychosomatic” caused about 4 more years of purgatory. I knew what I felt. I knew it wasn’t right. I knew that they were missing things. I also knew that it was so easy to characterize me as “crazier” if I didn’t tread slowly and calmly. I started inputting all of my information, symptoms, test results, notes, etc into AI engines and that really got the ball moving. I was able to get help in terms of understanding what these results actually meant. I was able to level the medical playing field a bit more and send the doctors questions that forced them to acknowledge that my tests weren’t actually normal. I was able to learn that though person A and person B may be getting the same test, they may have two different doctors that are looking for two different things so if person B’s doctor is looking for something specifically, that test may be reported as normal (even though as a whole it wasn’t normal). I’m using that specific example because after 6 years of being told that my shortness of breath was all in my head and that I was anxious and psychosomatic and I needed to learn to be less in tune with my body, I had one doctor, a few months back, look at me, tell me “I Believe You”, and order the correct tests. She was able to order the same tests that cardiology had ordered and told me was completely normal, and had additional readings read. She was able to see that my right ventricle wasn’t working as it should. She was further able to order an invasive cardiac test and was able to see that my lung pressures were too high. I will forever be thankful to her. I was constantly told my 02 saturation levels were fine and so basically I was too. This has taken 6 years of my life. I have not been able to work. My home went into foreclosure but thankfully I was able to get help to stop the process. My credit cards are all maxed. My elderly mother and aunt have both continued working and are foregoing retirement to help me. Because I did not have a set diagnoses, I have not been able to get disability. (I have a case that is currently in the appeal process.) Any donation amount would be greatly appreciated. All donations would be used for legal purposes, for living expenses, and for payment on my high interest rate credit card bills. God Bless.

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