Hello! My name is Teal and I’ve organized this campaign on behalf of my mom, Chastity, and baby brother Griffin. Chastity is a single mom of four, with two kids still at home: 7-year-old Grey and 6-month-old Griffin.
Griffin was born at Harris Methodist in Fort Worth on December 26th, 2016 and had a rough go of things from the start. His clavicle was broken during birth and he began retracting; he was struggling to breathe on his own. He was immediately transferred to Cook Children’s Hospital and placed in NICU. They slowly weaned him off his bubble CPAP (for breathing) and his feeding tube until he could breathe and eat on his own. He was released after about a week, PRAISE THE LORD! We were so happy to have him home <3 Unfortunately, that was not the end of his medical problems.
It didn’t take long for Chastity to notice that he was struggling to hold food down and Griffin went back to the doctor. They prescribed him ranitidine for acid reflux, which helped a little, but he was held a lot the first few months because sleeping more upright at an incline was the only thing that helped him keep his food down. Griffin, even before birth, had a large head in proportion to his body and that has continued to be true. These things are all risk factors of his soft spot closing early and plagiocephaly. Plagiocephaly is also called “flat head syndrome.”
Griffin had his 6 month check-up on Monday (June 26th). Griffin was referred to a specialist for a consultation to see if the DOC Band, correctional headgear for plagiocephaly, would be beneficial. The specialist saw him Tuesday (June 27th) and diagnosed Griffin with two forms of plagiocephaly. One form is also called plagiocephaly and another is brachycephaly. Plagiocephaly means one side of his head is flat and one ear is more forward than the other, while brachycephaly means his head is wider than it should be and the back of the head is flat instead of curved. Unnoted until recently, Griffin has torticollis (a tightening of the neck muscles on one side that impedes full motion) as a result of him favoring one side while his clavicle was healing. The torticollis directly caused the plagiocephaly. While both the plagiocephaly and the brachycephaly are moderate, the brachycephaly is borderline severe.
Contrary to what some may believe, these issues are not merely cosmetic. Right now, one ear and cheek are already out of alignment. It will continue to affect the formation of his face, jaw, and teeth; it will also affect his sight and hearing. It can contribute to sleep apnea later in life. The DOC Band can correct the deformities and prevent all of these future symptoms. The custom-made DOC Band works by placing gentle pressure on some areas of the head while leaving space for the flattened areas to grow. Worn 23 hours a day, usually just for a few months, visible improvement can be seen as soon as two weeks into treatment.
Griffin has Medicaid insurance, but they routinely deny covering the costs of the DOC Band unless surgery is required. The DOC Band is quoted at $4000 but the Cranial Technologies office that did the consult and preliminary measurements grants a 50% discount to Medicaid holders. If paid in full, the DOC Band will cost $1800. If made in payments of $420, the cost will be bumped to $2100. $300 makes a really big difference to a single mom! Seeing as Griffin is 6 months old, the average treatment is 2.5-3.5 months with some needing as long as 6 months. The expected treatment time increases as Griffin gets older, so the sooner he can get his DOC Band, the quicker he’ll be able to take it off! Griffin’s second appointment for final measurements before they make his DOC Band is scheduled for July 5th. At this appointment, the $1800 in full needs to be paid for the discount, or the first monthly payment of $420 is due. I have made the cut-off for the fundraiser a day before the appointment to hopefully allow enough time for processing and transfers.
Chastity, my mom, does everything she possibly can to provide everything Grey or Griffin could possibly need or want. I don’t know anyone who works as hard as she does to make ends meet. I know how stressful and scary it would be for her to come up with an extra $420 a month for five months, and I would really like to be able to bless her and Griffin with help that they really need. No donation is too small! And we need your prayers more than anything. I believe in a sovereign God who will move and provide for His children. Thank you so much for taking the time to read Griffin’s story and please prayerfully consider blessing him <3