**UPDATES AND PICTURES POSTED IN UPDATE AND GALLERY TABS ABOVE**
Brooke is dancing with Jesus. Thank you for you continued prayer and support.
June 6th, 2017
The time has come...Brooke had a CT scan last night of her abdomen and head. Dr Maris told me this morning that the disease has filled her liver and her skull is covered and the tumors are pressing on her brain again. Her lower spine is covered with disease and she has very little feeling from the waist down. She will get platelets daily to help keep her from having the pain of another brain bleed. Palliative chemo will stop. We will do everything we can to keep her comfortable. Please pray for peace for both of us.
March 4th, 2017 from Blessings for Brooke FB page:
Sorry for the delay on updating regarding Brooke's scans....I don't even know what to say. Her scans showed a significant increase in neuroblastoma. Her pain throughout the day is unbearable. She is no longer eligible for any clinical trials due to the amount of disease. We are doing all we can to try to make her comfortable. Please pray for a miracle for my sweet baby. Please pray for comfort for Brooke and strength for me. Please pray for more time...
"The worst has been confirmed. Massive wide spread progression. Brooke's cancer has spread basically everywhere. Entire skull, both shoulders, spine, hips and pelvis and both femurs. She is getting admitted today to manage the pain and will start chemo today and antibodies tomorrow. Pray pray pray please We really need a miracle.."
A Little History:
From Blessings for Brooke Facebook -January 2016
My name is Heather WIlson , I am a founder of GiveSendGo.com. When I heard about Brooke Mulford being in the hospital again I reached out to Amy and let her know we wanted to make a campaign for her.
The money that is given will go immediately to the family from our payment processor, GiveSendGo does not take any percentage out for ourselves (unlike Gofundme which takes 5%). We want Amy and Brooke to be able to use this money for ANY expenses that they might incur, medical or otherwise, or even for Brooke's wish list, that has been termed "Brooke's Wishes".
A little bit about Brooke :Brooke has been somewhat of a superstar in Salisbury, where I live, and where she is also from. A smiling face in the midst of a hard journey. I remember not long after I had moved to Salisbury, hearing about her first diagnosis. Watching our community rally around this family back then was incredible. But now it is time to do it again.
If you have been following Brooke's story from back then, you would read bits from Amy like:" Brooke has always been such a happy and a tender-hearted little girl, full of energy and a love for life. She never complained about anything until Christmas Eve 2008 (age 4) when she started limping and complaining of pain in her leg. She was misdiagnosed at a local hospital in Maryland with toxic synovitis. Soon after, she was unable to straighten her legs, the pain was unbearable and she started running a fever. At the Children’s Hospital of Philadelphia (CHOP) on January 5, 2009, Brooke was diagnosed with a very aggressive cancer, Stage IV high risk neuroblastoma. The cancer had started in her right adrenal gland and had spread through pretty much every bone in her body and approximately 80% of her bone marrow. Since that awful day, Brooke has had 8 rounds of chemotherapy, 4 surgeries, 2 stem cell transplants, numerous bone marrow biopsies, blood & platelet transfusions, 12 days of radiation to her skull, both femurs & abdomen and completed a grueling 6 month immunotherapy clinical trial (ch.14.18) in April 2010. "
You would then hear how there was a relapse in 2012 with this post that I saw on Facbook from Amy:
"Written 3 hours ago by Amy MulfordThis is the journal update that I hoped to never have to give...Brooke's scans confirmed yesterday that she has relapsed with Neuroblastoma. There is no cure for relapsed Neuroblastoma and the treatment plan will be to prolong her life as long as possible...A miracle is the only thing that can save my baby girl. Please pray for that miracle. I can not bear the thought of life without her...she is my entire world. There is nothing fair about this...Brooke is the sweetest, kindest and most loving little girl that ever walked this planet. She is pure joy...
The light of Jesus shines through her in all that she does. She loves life like no other. How and why is this happening??? There's so much I want to say about her but I can't because this is killing me and she is sitting across from me right now and I can't bear for her to see the pain that I am in...
I will stick to telling you the events of the past 2 days:
Tues we arrived for CT scan and it was chaotic as usual...took two hours before they gave her the contrast to drink and to make matters worse she was not feeling well with a tummy ache. It took her 3 hours to not even get through the first bottle of contrast and then she threw it all up. They told her to stop drinking and they would just do the scan. It was a long exhausting day.
We arrived Wed morning at 9:00, registration was fast and we were taken right back to get started. This is rare so I thought it was a good sign and we were going to have a good day...smooth sailing. Typically I watch the monitors while she is being scanned but every time I peeked there was nothing for me to see. The scan ended after 45 min and the tech walked out of the room so I went and took another peek and clear as day I saw a spot lit up on her spine...I knew what I was seeing was relapse...and a few minutes later the tech came back in and said they were going to the spec scan (which they only use if there is a problem so that confirmed my fear). They started the spec scan immediately and it lasted an hour. I had to keep leaving the room so that Brooke would not hear me crying...I knew...
We had plans to meet our friends Lisa and Robyn (Robyn came to CHOP from England for the immunotherapy clinical trial that Brooke was in back in 09/10 and relapsed a year later and is now back at CHOP) at POD for a sushi lunch. Brooke was starving when she finished the second scan and still wanted to go and I was still trying to act like nothing was wrong but I think she knew as well...
While at lunch, I sent Dr. Weiser and email. I told him I saw the spot...I know what it is...please make sure Brooke is in the clinic playroom before you see me in the treatment room. I did not want her to witness what I knew would be my breakdown...
After lunch we headed back to CHOP (with Brooke in the clinic playroom making snowflakes) and Dr. Weiser walked through door into the treatment room and he and I both broke down...He loves Brooke so much and I know that giving me that news was almost as brutal for him as it was for me to hear it confirmed...
When Brooke was first diagnosed it was like being the whole deer in the headlights thing. You have no idea what is going on and you can't even begin to process it all. This time around I am all too aware of NB and what relapse means...
I had a glimmer of hope at least the first time around and I held on to that with every ounce of my being...the only hope now rests in a miracle.
For now, Dr. Weiser will meet with all of the NB greats at CHOP and brainstorm to see what options are out there and what they think will be best for Brooke. They have sent out her original tumor from 4 years ago for further testing. Hopefully the results will be back by next week and Brooke and I will head back to CHOP on Wed or Thurs.
As I laid awake all night holding onto my baby for dear life, I decided that in the time that she has left, I am going to make sure that every dream she has comes true. We will go everywhere and do everything...Last time around I didn't want to ask anyone for anything or ask for help...this time around I don't give a damn about that - I just want to make sure that she lives every day with the same joy she has now and then some. Nothing else matters...If you think of an experience that Brooke might enjoy - let me know!
Time to head back to Salisbury...please pray and ask everyone you know to pray for that miracle.