Yesterday was an emotional day for me. Wednesday night both Chloe and Sam went down, which means I usually don't get much sleep. We woke up Thursday morning ready to take on the world for Sam's 16th birthday adventures.
However, Paige had severe intestinal pain, Samantha had hip, knee and shoulder pain and Chloe coudn't walk. And all three of them were feeling yucky. We had a choice to make, stay home and le tthem rest or continue with our plans. We decided to not let Lyme win and continued with our plans. I kept saying over and over again, Lyme won't win, Lyme won't win.
Chanting that didn't help much as we had to run in and grab meds for Sam before we even left the driveway. We got lunches and snacks packed, we got 'go bags' packed, we loaded the wheelchair and we were off. On the car ride to the art exhibit I relefected on our last few years and now hard they have been on everyone. How unfair it is that my girls can't have a normal life, that birthdays are plagued with pain and medicine. That it takes us two hours to leave the house because we need to pack safe food, medicine, medical equipment and go bags. That I always have to have someone with me in case all the girls go down at the same time I have help. I get so angry at what they have lost, at their childhood and teen years that have been stolen, it just makes me so angry! I wish I could make it all better for them. I wish I could take away their pain.
Our day was full of other trials, you can read more on our facebook page: We Support Paige and Samantha
These updates are limited on words and data, so I can't write much here, but read this full post on our facebook page, along with a video!
It is with a heavy heart that we share that our youngest daughter, Chloe (9), was diagnosed with Lyme and 2 co infections this week.
We can hardly believe it, we are just gutted by her diagnosis.
Your help is needed more than ever before. Caring for and paying for treatments for 3 girls is so overwhelming.
Thank you to everyone who has donated to our girls and prayed for our family. We don't have words to express our thanks and gratitude.
The past few years have been quite a challenge for us, caring for the girls and providing for their needs. The last couple of months have gotten increasingly harder with the declining health of my husband.
The Lord has been faithful and through and throught he love, support and help from people like you, we are still managing. We still have a home and the girls still have their medicine. We have had to give up a lot and cut out tons, but we have needs, and we will forever be thankful.
Please continue to pray for us, some days I think those prayers are all that get us through the day!