On June 22, 2019, after an uneventful evening with family and friends, then 7 week old Felicity Warren turned blue while in her father's arms. She was rushed by ambulance to an Arizona Children's Hospital, where she has remained ever since. While at intake, the cause of her "episode" was thought to be a simple one common in early childhood, she has suffered additional, more severe episodes while in the hospital and a month later, she remains in the ICU, in much more critical condition.
She has multiple medical conditions that continue to elude her medical team as to their cause or best treatment plans. She has suffered a heart attack and stroke and for reasons still unknown, her heart rate and oxygen saturation rates drop without warning. Her doctors describe her as a "puzzle." They have never seen the combination of presentations that Felicity has. One doctor described her as the sickest patient in their hospital. She has damage to her heart, brain, and spleen, and her kidneys are struggling. Because her condition still has yet to be diagnosed, it's unknown how long she will continue to be in the hospital. She is currently listed in "critical but stable" condition.
Their family, friends, and church family have rallied around them with provision of meals, childcare, and hospital companionship. We now have the opportunity to bless them with financial support.
Along with enormously mounting medical bills, her family also faces the financial costs of lost income incurred while being at their daughter's bedside instead of at work. When she has been stable enough, her dad has continued to go to work, as well as hold down the fort at home with their other 5 children.
In addition to the financial burden alreay incurred, it is likely that she will be transferred to a leading Children's Hospital in another state. Her dad will stay here, which means travel expenses for visits to and from the other state will be incurred, and her mom will travel with Felicity, which means she will incur costs for housing, food, and transportation away from home.
Lastly, once she is able to finally come home, her recovery will be slow, costly, and limiting of her parents' employment availability.
Felicity's parents are people of faith and they trust in the God who created Felicity to orchestrate His perfect plan for her life. The humbly request that you join them in prayer for their sweet girl, as well as for the rest of their family.
About the Unicorn EKG image: in the early days of her hospitalization, a doctor explained that part of what made her care difficult was that when you hear hoofbeats, you look for horses, not zebras, but she's one of the few who IS a zebra. A friend remarked that she was far too pretty to be a zebra. She's a beautiful, rare unicorn. While looking for something to make to brighten her hospital room, I found the image above online and thought it was perfect for her and her rare heart. The image is used with permission from the artist.
I (the fundraiser coordinator) am Felicity's Godmother. The account is listed in my name so that her parents would not have to leave their daughter to go to a bank to set up an account. Any money received will be given directly to the family to use for medical care, living expenses, and travel to and from the hospital(s).