Hope had a bit of a rough day. She’s been fussier than usual and has had stomach upset most likely from the antibiotics she is on.
She did get one of the tubes out of her nose that was used to pump her stomach, so we are thankful for that.
Tonight she went into a super high heart rate called an SVT. It was a scary few hours for us, but thankfully they were able to get it down with medication.
Thank you so much for continuing to pray for our little girl!!
Thank you for all the continued prayer.
Hope continues to recover from heart surgery and sepsis. She was transferred today to the cardiac step down unit at Boston Children’s Hospital.
We’re happy to say that after 5 weeks of intensive care, she no longer needs an ICU!
We appreciate continued prayers as she still has to finish her antibiotic course and learn how to eat again by bottle.
She is still on oxygen and it would be wonderful if she could be weaned from that as well.
Thank you so much everyone!!
Good morning everyone.
Hope is much more stable today.
We got the blood culture back last night and it did test positive for an infection. Thankfully one of the antibiotics they started yesterday covers that kind of infection.
Please continue to pray for her recovery and that she can resume feeding normally soon.
They are keeping her on IV fluids for today; but she is off air support again and doing well. There is some chance we will be moved to step-down unit today but we won’t know until later this afternoon.
Thank you everyone for the prayer, love, and support!
We love you guys!
Immediate prayer request: Hope has developed a fever. The hospital is running labs right now.
(A common sickness for healthy adults can be dangerous for small babies, and devastating for small TS-18 babies.)
She also has excess bile in her stomach which we are unsure if it is related to the fever or not.
Thank you so much for walking this road with us!
Thank you for interceding on Hope’s behalf!
New update from Pastor Brien
“Hope is doing well off the ventilator. Doctors will continue to further wean her off the cpap.
Her pain level seems to be improving and its starting to feel like we are getting our little girl back.
We are able to hold her now!”
New update from Pastor Brien’s Facebook.
Sorry for the long delay. The medical staff wanted to be extra cautious before extubating.
The good news is...no more breathing tube!!
Please pray Hope can maintain strong breaths on the nasal cannula and that she keeps getting stronger.
Thanks for praying!
Thank you so so much for your prayers, support, financial giving, and sharing this page. What an incredible outreach you have given to the Dunphy family and Hope! Thank you just doesn’t doesn’t do it justice.
I want to share some updates from Pastor Brien’s Facebook page.
Update 1: “Despite going through open heart surgery with one of our babies before, this never gets easy and it never gets simple.
Thank you for continuing to pray for our precious Hope.
Please pray for fluid to come off of Hope’s lungs.
The doctor’s have to delay the removal of her breathing tube since she has this excess fluid.
They are increasing her diuretics now. Please pray it is effective and her body does what it needs to in order to further recover.
We love you all! Thank you for praying!”
Hope still has a lot of fluid on her lungs so we need continued prayers that the fluid would come off. The doctors are aiming to taking the breathing tube out tomorrow if Hope continues to improve.
We are praying she will be able to breathe sufficiently on her own. She is already showing she can take breaths on her own, but with the excess fluid it makes it harder for her.
Please also pray for her as she is experiencing more pain as they wean pain medication. It’s so hard to see her in pain.
Thank you for your continued prayers and messages of encouragement!
This is a recent post from Pastor Brien's FB page. It's more of a thank you than an update on Hope.
An update on Hope is coming very soon.
Here was his post:
The messages of prayer and encouragement have been so incredibly encouraging. Thank you so much for each and every one!
Also of encouragement has been seeing the great things, and the difficult things, going on in everyone else’s lives.
I’m seeing new beginnings and vacations as well as sicknesses and doctor’s visits. Birthdays and anniversaries, as well as heartbreaks and hospitalizations.
I know the Dunphy family isn’t the only one going through hardship right now, and likely there will come a time when we will have a season of lightness while others are in a season of heaviness.
Please know my daily prayers are not only for myself and my family right now. They are for everyone touching our lives. Whether you are also in a season of heaviness or enjoying a season of lightness, we are praying for you as well.
For my friends in heaviness, I pray the Lord would give you a peace that passes understanding and the strength to persevere in His love.
For my friends in lightness, I pray you enjoy every moment to the fullest and nothing robs you of the blessings and joy the Lord is giving you.
Wherever the Lord has us right now, whether heaviness or lightness, it is true worship to embrace that moment with great energy, knowing it is His hand which sustains, and it is His hands which blesses.
Thank you for continuing to walk with us on this road! Thank you all for the loving, the giving, and the encouraging!