Brayton is about to lose his wheels! Brayton is our 14-year-old, amazing, determined and loving son who was born with Warburg Micro Syndrome. His syndrome has brought him many challenges throughout his short life. He has faced multiple surgeries, starting at just 5 weeks old with the removal of congenital cataracts. He has since had multiple surgeries including placing a feeding tube, repairing a laryngeal cleft, and major bilateral hip surgery at 7-years-old.
One of the many daily struggles he overcomes is the inability to walk. Brayton relies on a wheelchair to move about his surroundings. We were told that he would always require someone to manually push his chair due to his low muscle tone, but our prayers were answered. Brayton was determined to overcome his limitations and gain as much independence as possible. He is currently able to propel his wheelchair around his home, school, and other surroundings with supervision to minimum assistance. We could not be prouder of our little fighter.
Here is where our problem arises, in order to transport Brayton, he requires a special wheelchair accessible van. We currently have a very nice, accessible, fully functioning van. However, in spite of our best efforts to try and stay on top of finances, we fell behind on vehicle payments. At this time we are facing financial collapse and need some short-term help to avoid losing Brayton’s handicapped accessible van. This would be disastrous as we must have accessible transportation for Brayton. We continue to pray and hold onto faith that we will find assistance.
We fall between the cracks – we are working as much as we can to stay ahead, and do not qualify for government assistance because we do not meet the income guidelines. We can’t get a loan due to our credit and limited income.
A little about our family and how we came to this hardship situation: I am Renee, Brayton’s mom. I worked full time all of my life to support Brayton, who is disabled and requires care 24/7. My husband, David and I adopted his granddaughter (now 6.5-years-old) who also has special needs due to her trauma related history. Both children required me to take time out of work for extensive travel to Boston Children’s Hospital for specialized interventions. This ultimately led to the loss of my full-time job and therefore my income. I immediately began working toward a better job in order to provide for my family. I am currently a full-time student at Bristol Community College, in my last semester. I will be graduating with highest honors as an Occupational Therapy Assistant as soon as we are allowed to finish our fieldwork due to the pandemic.
David is a loving dad (has taken on the responsibilities of raising my son as his own) and has provided for our family through full time work as a carpenter. He became critically ill in January 2019 and was hospitalized, underwent testing, and eventually required surgery. David was in and out of work throughout 2019, many times without pay due to illness. With him being the sole provider for our family, this put our family in a further financial hardship. We had already experienced financial struggles due to my loss of income, increased expenses due to the adoption, and increased medical/family needs.
We really appreciate any support and assistance. Without Brayton’s accessible van, we will not have a way to transport him to his medical appointments, therapies, or to any family events. He will be trapped in his own home beyond the stay at home order. Thank you so much for your consideration.