First of all, a huge THANK-YOU to everyone who has already donated to help cover the costs for Mikaela's surgery and for the many many prayers!
Mikaela is back home and following a round of ABM therapy, we are already seeing a more calm little girl, praise the Lord!
We now begin an exciting local campaign called Moustaches for Mikaela. Mikaela's daddy has had his moustache for over half of his lifetime, you could say its one of his defining characteristics:) Chris is giving up his moustache, that's right, shaving it off for his little girl! The infamous moustache is set to come off on Sunday, May 26, 2019. As an added bonus, Matthias, Mikaela's little brother will be receiving his first ever haircut - him too giving it up for his big sister!!
Mikaela is a 5 year old Yellowknifer who had severe strokes at birth, causing her to have Quadriplegic Cerebral Palsy, severe seizures, blindness and other challenges. Life for Mikaela has been a struggle from birth, with ongoing pain and suffering throughout her short life that came to a point of desperation with the dislocation of her hip, a result of the spasticity from the cerebral palsy. Even a simple diaper change is a challenge and often results in hours of crying from the pain it causes. As of March 21, 2019 Mikaela was admitted to hospital for pain management, on round-the-clock morphine. She needs urgent surgery to address her dislocated hip. There is a unique surgery available only in the United States that is less invasive, with better outcomes and much less recovery time. The only available option in Canada is to sever some tendons around the hip, which would result in the loss of any possible mobility, eliminating any potential for using those muscles again. There are only two practitioners in the United States with the expertise to perform the alternative procedure whereby holes are made in the fascia of the muscles, stretching them out, reducing the spasticity and thus the risk of dislocating again. The benefit of this procedure is that there is no loss in function but rather a potential to gain in function. With severing tendons, as done in Canada, there is a permanent loss of function. With Mikaela’s severe disability, every bit of mobility counts. For instance, with this potential for mobility, would come the potential for Mikaela to reposition herself at night for comfort and pain relief. Right now, Ruth or Chris wake up every night, multiple times a night to re-position her. For the past couple of years, Mikaela has also been engaged in a very specialized form of therapy called the Anat Baniel Method (ABM), a therapy for brain injury and neuro-movement. The MacNaughton family has witnessed gains from this therapy, for instance noting increased mobility in her arms, reduced spasticity in her legs, much more movement in her neck, improved posture, increased awareness and responsiveness, gaining of some sight, improved sleep, and overall improved quality of life. It is their hope and prayer that by preserving the potential for mobility in her legs, Mikaela's overall quality of life and their family's quality of life would be improved significantly.
Answers to prayer have resulted in a swift response from a practitioner in Galveston, Texas and surgery is scheduled to proceed on April 24, 2019. Unfortunately, this surgery is not covered and the estimated cost of the surgery and four days in hospital is just over US $30,000 (approximately $40,000 CAD, not including the cost of flights and accomodations).
Please pray for a successful surgery and improved quality of life for Mikaela.
The MacNaughton Family is so very grateful for all the prayers, love and support!