Prayers and support for our Valentina Ariana Ionta
Raised:
USD $15,776
Campaign funds will be received by Deborah Ann Ionta
Prayers and support for our Valentina Ariana Ionta
At eleven months old, my dear granddaughter Valentina Ariana Ionta has been diagnosed with a rare pancreatic condition, congenital hyperinsulinemia. She has spent two weeks in the PICU and then a week in a regular pediatric room. Now, after being home for only three weeks, her medication has stopped working. Valentina has been readmitted to the PICU and is awaiting transfer to the Children's Hospital Of Philadelphia (CHOP) for further treatment and potential surgery.
Valentina arrived at CHOP on Sunday, March 30. Genetic testing was done on Monday for hyperinsulinemia, and the results are expected in one week. Once those results are in, Valentina will have a PET scan. Once all the results are in, we will know her next steps and update here again.
Right now, it is such a hard time for all of us. We need answers to get our sweet girl better. Valentina will be in CHOP for at least eight weeks, undergoing evaluation and testing. If she has surgery, this could stretch out to several months. During this time, her mom will be staying with her and unable to work. Her dad will be there as much as he can but must return to NY to work as his remaining time off is limited. Grandparents will fill in for him and look after Valentina's big brother.
As a family, we stand united in our faith and love for Valentina. Your prayers and support mean the world to us.
Recent Donations
Sending love and strength to Debbie and Valentina💝💝
Prayers for Valentina! God bless this beautiful baby girl.
Valentina and your family are in our prayers
Praying for Valentina🩷🩷
Debbie, you and your family are in my prayers. I can't imagine how hard this can be! I am wishing you the best for your sweet little girl.
Praying for sweet Valentina and her family 💗
Get well soon baby Valentina ♥️
Sending you all love. Valentina’s a strong girlie. 🩷
Sending love & hugs to Valentina! Debbie, your strength and courage are infinite and you give new meaning to the words “strong mama.” I am praying for your family every day!🙏🏻♥️
Prayers and comfort
Updates
May Update
May 4th, 2025
Valentina came home on April 30. It was wonderful for us all to be home. However, today, May 4, we are back at CHOP in the ER because Valentina has a fever and some complications with her G-tube. We will post another update as soon as we know more.
April Update
May 4th, 2025
Valentina had surgery on April 21 to insert a G-tube because she has severe diffuse hyperinsulinemia. The G-tube is so she can receive her dextrose and medication. Valentina will have this G-tube for a minimum of one year and potentially up to four years. During this time, she will be required to visit CHOP regularly. Valentina was supposed to go home on April 28. Still, since she has developed an infection in her G-tube, this will be delayed. Once Valentina is back home, she will require skilled nursing care from 8 PM to 8 AM daily.
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