(Continued from update 12)..... life without him. He deserves to live. He deserves to see his son grow up, to graduate, get married and to see his grandkids. It’s incredibly unfair to our kids to lose him. It’s incredibly unfair to his parents to lose him. Please pray we don’t lose him. It’s not supposed to be this way. “Mike will not die but live and declare the works of the Lord.”

We really could use some extra hard prayers for Mike. If everyone who reads this can stop what they are doing and pray please. Please ask everyone you know to pray. We need miracle healing because his body and mind I think is too tired to fight anymore. Still waiting on insurance approval for the Immunotherapy. I called and asked them to expedite but they said it could still not be approved until Friday and hence not starting until next week. I don’t know what else to do because he is really not doing well. I dragged him today to get another high dose vitamin c infusion and also to get fluids later in the day because the doctors called and said his calcium is very high. He can’t hardly stand up, it takes all my strength to get him up, he can’t hardly walk so I have been using a wheel chair, he is very confused still, he doesn’t want to eat or drink, his oxygen seems to be getting worse so we have him on oxygen 24/7. I’m honestly pretty scared. I see the life leaving his body. We need another one of those miracles. I am mentally, emotionally and physically exhausted. I want him to fight. I want him to be that miracle. But I also don’t want him to continue to suffer like this. I want him to be at peace. Something has got to give. I miss my husband. I want more than anything for this immunotherapy to turn him around and for him to get better. We have built an incredible life together over the past 14 years. I know him better than he knows himself and he knows me better than I know myself. We have had the most wonderful adventures together, have the best memories ever, so many laughs, so many tears, we have made it through the unimaginable together, my best friend, my lover, my soulmate, my husband, the father of our boy, the most wonderul step dad to my older kids. Man he loves me more than I ever knew a man could love. Sure we weren’t perfect and we had our struggles but we always made it through and we always grew stronger. Truly my ride or die. I can’t even begin to imagine......

Today was a really busy day! Mike got his first round of radiation on his hip and tonight we chose to go ahead with chemo despite his rbc count and hemoglobin being low. Please say a prayer for Mike that the radiation he will have over the course of 5 days will tremendously help his hip pain and pray that this chemo that he will also have over the course of 5 days will do what it needs to do without causing too much harm to his body. Mike is also still on the BET Inhibitor. Praying for a good synergistic effect with the combined treatments. Kayson got to play a couple of rounds of go fish with daddy today. 

“Dear Heavenly Father,

As Mike begins this treatment, I pray that every medicine, every drop, every dose does exactly what it’s meant to do—targeting only what needs to go, and leaving the rest of Mikes body safe, whole, and strong.

Let this treatment be powerful -working fully and completely.

Shield Mike from harsh side effects—protect Mikes body, Mikes energy, Mikes mind, and Mikes spirit.

Let Mikes appetite remain, Mikes strength endure, and Mikes heart stay at peace.

I declare healing over Mikes body, peace over his mind, and grace over this journey.

I trust that even now, You are working all things for Mikes good. In Jesus Christ I pray Amen.”

Tomorrow the doctors and the oncologist want to have a meeting in regards to Mike and want our family there. Please pray for discernment, wisdom and guidance for us and for the doctors to stop looking at him as he is terminal so can’t be helped. They are not open to giving him ivermectin or febendazole or anything else that is not FDA approved etc. We are trying hard to get him BET Inhibitors for compassionate use… which has been used in NUT carcinoma trials. Please pray that the people we are reaching out to reach back out to us and agree to send it to us and that the doctors will agree to let him him use it. There will also be talks of him getting a tracheotomy and what that will look like. I have been on the phone all day with MD Anderson, and our insurance that MD Anderson does not take. I am in the process of trying to get an approval for him to get care even though they don’t take our insurance. If things do not go our way tomorrow then we will explore that and try to get him transferred via care flight if need be to MD Anderson that will treat his cancer. If anyone has any connections whatsoever with MD Anderson, or UT Southwestern or in the Insurance world or in the pharmaceutical world or anything, please reach out to me. Mike’s on 60% oxygen and they said they would take him off the vent if he got to 50% ….they don’t believe that he’ll be able to get off of the vent or the trach because of his tumor but I am still praying that he will! God is the ultimate healer!!!! Every other part of Mike is great and functioning the way it should. I’m not going to give up on him. I’ve been told my whole life that I am stubborn and this is the time that it’s gonna pay off .  Please share this post and get it out to anyone that might be able to help us out and keep the prayers coming… thank y’all soooooo much. ❤️❤️❤️

Edit- I have the fendabazole and ivermectin already but he is sedated with a tube going down his throat-aka intubated so there is no way for me to give it to him. The doctors would have to give through an iv or feeding tube and they are unwilling to do so.

Doctors said Mikes oxygen and lung is getting worse. They did xray a few minutes ago and the whole right lung is whited out so they are going to do a bronch today to try and clear it out. They won't even try to wake him right now because he is requiring too much oxygen. This is really torturous. Praying for a turn around soon and praying the tumor starts to shrink sooner than later. 🙏

Mike is still sedated/intubated(has been 1.5 weeks). The cancer is attacking his lung at an aggressive rate and they are unable to get him off the ventilator safely at this time(they've tried waking him up a few times and the most recent time, he winked at Lindsey 🥰). They were able to get approval from the doctors to do radiation while he is asleep to try and attack the tumor to allow his lungs a chance to get off the ventilator. God moved mountains to allow that to happen yesterday. They need all the prayers they can get! We know this is a tough road but we know God is a miracle worker! 

Thank you to everyone who has donated and shared! We had over 100 shares on our last post. Thank you!!!

Update! 5 pastors came and prayed LIFE over Mike yesterday and after that we saw positive changes and improvements in him! They were small but so important! He’s off one of his blood pressure medicines completely and handling it well, he’s off his paralytics and handled it well, he is off some of his sedation medicines and handling it well! He is even more coherent today and Mike’s dad asked if he could try and open his eyes and he tried! Praise the Lord!!! The pastors came and prayed, all of you prayed and God heard our cries and he delivered!!! We are hoping he will be fully awake by the end of the day. Next step is to see if he can follow commands about his breathing to not work against the intubation. If all goes well with that and his saturation levels stay good he can be extubated! Then we can start the cancer treatments! The Pastors prayed for him to be FULLY healed in the name of Jesus. Cancer has no place in his body and he will be fully healed! Pastor Shane from the Bridge, pastor Brandon from Stonewater Tolar, Pastor Meg from Temple Hall church, Apostle Lance and Prophetess Wanda from a weatherford church! They turned around my spririts and were so kind and loving! Pastor Brandon even bought me food since I hadn’t eaten in 24 hours! I’m so grateful for them and for all of you. Mike will be healed in the name of Jesus! “Therefore I tell you, whatever you ask in prayer, believe that you have received it, and it will be yours."

Matthew 11:24

Mikes still intubated and sedated for now. He’s doing good though and vitals are good. Continued prayers are needed for complete healing over his body and for the cancer to stop spreading. Thank y’all so much. ❤️

I pray for Mikes healing

That circumstances would change

I pray that the fear inside would flee in Jesus name

I pray that a breakthrough would happen today

I pray miracles over Mikes life in Jesus name, in Jesus name

No weapon formed against Mike will prosper. 

Mike will be healed in Jesus name. Amen. 🙏

Doctor came in and said he thinks surgery may have been successful but the doctors that did it are going to come in and say for sure. Good news is they are going to try and wake him up and get intubater out today if not today then tomorrow. They are having to artificially keep his blood pressure up and it’s still really low but it could be from the heavy sedation. This was a life threatening thing so thank the Lord we were at the hospital and not at home. Oncologist called and he said they did find more cancer in the bones. The upper right arm and the right hip. 😞 But he still thinks the radiation can be done to target the tumor at least. They may try and do in the hospital in a couple of days since it’s an emergency situation, but right now they got to get him completely better from what all transpired first. No weapon formed against Mike will prevail. Mike will be healed in the name of Jesus. Amen. Thanks for all the prayers. ❤️

The doctor at UT Southwestern said looking at everything it IS NUT Carcinoma. We already knew it but to hear it directly was hard but we feel very confident with this doctor. We are glad to stop with all the in limbo crap from JPS of not knowing exactly and them draggingg their feet. He was on board for all the things I wanted to do before I even presented them to him. He said chemo alone is almost completely ineffective and he wants to do immunotherapy with it as well as radiation (Mike brought that up yesterday and JPS shot that down too,) as well as lung surgery. He said we have to hit it with everything they got and although they don’t have any NUT Carcinoma trials he wants to present this case during his tumor meeting on Friday with everyone and get good game plan going for Mike. Yesterday at JPS I asked for a cat scan and pet scan and they said no but this doctor thought it was much needed and so Mike’s been put in accelerated scheduling and he will have an appointment within 24-72 hours. This doctor knows how every minute counts with this rare, deadly cancer. He also wants to drain the liquid (plural effusion) and test it. It will also help relieve some pain Mikes in. He also is going to have their pathology team do testing as well. So with UT Southwestern they are going to do immunotherapy, radiation therapy, chemotherapy and even surgery to the lung if possible. 🙏 I’ve looked into a few cancer centers across the U.S and Mexico for alternative treatments and they are 30,000 to 120,000 cash and don’t take any form of insurance because insurance won’t approve a lot of these alternative ways to treat it. We feel very confident with UT Southwestern and feel like this is where he needs to be but we also know time isn’t on our side with this diagnosis and would like to keep the doors open to these other treatments as well and I am saving up everyone’s much appreciated donation. Please, please keep all those prayers coming and if you feel led to donate you can either donate to the givesendgo, Venmo or cash or check. We appreciate all of you so very much. This has been extremely hard but you all have helped us through this.

We need prayers more than ever. We have had a whirlwind of emotions today with a lot of information thrown at us but no good or solid answers. Pathology came back and they said it was still either germ cell tumor vs nut carcinoma. Something in the testing for germ cell came back negative though but the piece was so necrotic it may have interfered with results and there was positive testing for the NUT protein which is leaning towards NUT Carcinoma. However they need additional testing done to determine if there is a gene mutation called BRD4 and PDL1. Those will determine if it is NUT Carcinoma. They have done all the testing they can do and they are now having to send off to the Mayo Clinic for the additional testing which can take another 2 or 3 weeks. If it IS NUT Carcinoma we are running out of time. The average life expectancy is 6-10 months. This is SERIOUS. For now all we can do is go to JPS and get chemo on March 18th but NUT is very resistant to chemo. We are trying to get into MD Anderson because they know more about NUT Carcinoma and have the best care to offer for it. It’s so rare that most places don’t really know much about it and how to treat it. We found out we got insurance through marketplace on March 1st ( we were applying like crazy while he was in the hospital and didn’t realize one went through.) The problem is MD Anderson does not take any marketplace insurance, we can’t get and financial assistants through them they said because we qualify for insurance so it’s not allowed but they do take Medicaid . However, due to us getting some money here and there due to some jobs here and there we were denied through Medicaid. We will have to keep applying and the process can take months. We may not have months. We are going to go ahead and get him seen there and just pay cash (4,000 and up they said due to the rareness of this) plus doctors visits, labs, etc. We need nothing short of a miracle. I am begging you to continue praying and get everyone you know to pray. There’s still a slight sliver of a chance it might be germ cell and this would be ideal. On a happy note the amazing outpour of love and support continues to make me weep as Mike and I can’t do this on our own. We appreciate y’all so very much. Thanks everyone.

Day 15- Mike didn’t do the open biopsy surgery because it was too risky. Instead they did another endoscopy. They found that the mass has grown quite a bit just from the last one and the cancer has also penetrated the inside of the lungs and he now has some bubbles on it as well. It’s very aggressive. Biopsy results will be back in supposedly 6-10 days. Please pray that it is NOT Nut Carcinoma and just a germ cell tumor. He is on day 2 of chemo and is doing really well with it so far except for one of the medicines really drains him. We need this chemo to kick this cancers ! Mikes mom reached out to MD Anderson and it’s going to cost us 4000 dollars for our first visit up front and then we are responsible for doctors visits and labs as well. She also reached out to another place in Boston that has trials for the nut carcinoma. We are in for the fight of our lives but we will do whatever it takes. I’m sorry for not being able to respond to everyone or have short answers it’s just so all so much. I’m also sorry to those that donated that I haven’t got to say thank you personally too. I see you. I appreciate you. I’m so grateful for good people like you. Any amount helps even 5 dollars. But if you can’t I COMPLETELY understand and prayers are free and can be life changing. Also so thankful to friends that blessed us with meals and offered to take the kids etc. Please share this link or my venmo if you can! We normally are not one to ask for this and are usually givers to others but this is LITERALLY a matter of life or death aka Mikes life!!! God bless you all! ❤️